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A Call for Action
BUILDING CONSENSUS FOR
A NATIONAL ACTION PLAN ON MENTAL ILLNESS
AND MENTAL HEALTH
A DISCUSSION PAPER
PREPARED BY
THE CANADIAN ALLIANCE ON
MENTAL ILLNESS AND MENTAL HEALTH
(CAMIMH)
June 2000
PREFACE
Mental illness and mental health
have been neglected in Canada for far too long. Consider the alarming statistics:
• At least one in five people will be affected by mental illness during
their lifetime.
• Four thousand people commit suicide each year.
• Depression will be the single most expensive cause of loss of workplace
productivity due to disability by 2020.
Preserving and promoting mental
health can contribute to healthy
families, productive workplaces and nurturing communities.
Now consider these startling facts about Canada:
• The need for care, treatment, rehabilitation, community integration and support programs and services far exceeds what is available in most communities.
• Mental health promotion and prevention issues have been placed near the bottom of the priority list of health care initiatives undertaken by all levels of government.
• The stigma associated with mental illness and lack of public awareness about mental health issues prohibits open discussion, a co-coordinated approach to finding solutions and often, help for the people who need it the most.
• Canada does not have a national information collection and reporting system to allow for the accurate estimation of the incidence and prevalence of mental illnesses or to evaluate mental illness and mental health programs, services and policies.
• There is no organized mental illness and mental health research agenda in Canada.
• The level of consumer involvement in mental illness care and prevention and mental health promotion falls well below best practices.
• Canada, unlike most other developed countries, does not have a national action plan for mental illness and mental health.
The Canadian Alliance on Mental Illness and Mental Health (CAMIMH) calls for significantly increased attention to mental illness and mental health promotion at all levels of Canadian society. This paper is CAMIMH’s tool to engage a broad range of stakeholders in generating ideas and building consensus on a national vision and action plan for mental illness and mental health. It is hoped that this discussion paper will inspire many new partners and allies to WORK TOGETHER to achieve this vision through one strong voice.
We propose four main issue areas
for change to improve the current situation:
• Public Education and Awareness
• A National Policy Framework
• Research and
• Information/Data System.
Some initial goals and options for action are suggested within each issue area. Please engage your constituencies in dialogue regarding these issues and provide CAMIMH with your feedback.
The time to take action to redress the serious lack of attention to mental illness and mental health issues is now!!! CAMIMH looks forward to hearing from you.
I. WHY?
INTRODUCTION
The Canadian Alliance on Mental
Illness and Mental Health (CAMIMH) is pleased to present this Call for Action.
CAMIMH is made up of five national organizations concerned with mental illness
and mental health:
Canadian Mental Health Association
Canadian Psychiatric Association
Mood Disorders Association of Canada
National Network for Mental Health
Schizophrenia Society of Canada
Representatives have been meeting
regularly to build a common vision for the future, in which:
• those with a mental illness and their families receive the care, supports
and attention they deserve from our society and our health care system
• mental health promotion is undertaken as a co-ordinated and regular
educational and awareness building activity
• mental illness and mental health hold a higher priority on the health
and social policy agendas.
Before we proceed, we want to be
clear about a few things this document is NOT:
• It is not a discussion of substantive issues relevant to mental illness
and mental health, such as suicide, homelessness, care and treatment modalities,
specific mental illnesses and specific mental health promotional considerations.
• It is not a health policy discussion, but rather an attempt to shine
the spotlight on mental illness and mental health and their vast but underrated
importance.
• It is not a guide to service system reform, but a call for a much
more fundamental shift in how Canada deals with mental illness and mental
health issues.
CAMIMH’s approach represents
a major shift in at least three ways.
1. A Common Perspective
Our Call for Action comes after nearly two years of consensus building. Despite
some basic differences in perspectives among the consumers, families, core
professional service providers and community organizations represented in
our organizations, we have built a clear collective vision based on the goals
on which we agree.
2. A Focus on the Place of Mental
Illness and Mental Health
This paper begins to position mental illness and mental health prominently
within the health and social policy fields.
3. A Broad Vision of Mental Health
Reform
Our vision for change involves a holistic notion of reform consistent with
the Canada Health Act, which calls for “reasonable access to health
services,” as well as protection, promotion and restoration of physical
and mental well-being.
Our task is enormous, but we have had some essential help in taking this first step. CAMIMH would like to acknowledge the financial assistance of the Federal/Provincial/Territorial Advisory Network on Mental Health in helping CAMIMH lay the groundwork for this paper. However, the views expressed in this paper are entirely those of CAMIMH and in no manner are intended to reflect, presuppose, or compromise the positions or views of those who provided financial support to CAMIMH. A special thank you also to the key informants chosen from our five organizations who participated in a focus group to provide feedback on an earlier draft of this paper in late December, 1999. Finally a thank you to Pam Thompson for facilitating some of the critical early meetings, and to Dorethea Helms for her invaluable editorial assistance.
We hope this document will inspire other individuals and groups who care about mental illness and mental health to begin asking questions, talking about the issues and promoting policy and attitudinal change.
STIGMA: AN OVERRIDING CONCERN
Stigma by definition is a ‘mark
of shame or discredit.’ People with mental health problems are often
stigmatized and discriminated against due to lack of knowledge, misinformation
and fear on the part of the public.
“This study [first US national survey of county-based health programs
for the mentally ill] indicates that public prejudice is the number one problem
that the mentally ill face in this country today. It, like the Surgeon General’s
December 1999 report on Mental Health, shines light on a corner of health
that has been kept in the dark for far too long.”
U. S. Deputy Surgeon General Dr. Kenneth P. Moritsugu (National Association
of County Behavioral Health Directors, 2000)
"Our findings show that the
stigma surrounding mental illness is just as disabling as the disease itself,
and that needs to be abolished, since we now have the new medical treatments.”
Robert C. Egnew, Spokesperson for the NACBHD (National Association of County
Behavioral Health Directors, 2000)
CAMIMH believes that persons with depression, schizophrenia, severe anxiety,
or any other mental illness should be free to deal with their issues as openly
as persons suffering from heart diseases or diabetes. Research demonstrates
that stigma all too often results in people delaying seeking treatment and
families denying that a family member may have a mental illness.
Stigma continues to “infect” every issue surrounding mental illness.
Due to stigma and the inadequacy of services available to meet the needs of individuals and families affected by mental illness, there has been a feeling of powerlessness among the “grassroots” to change the situation.
The framework for a National Action Plan that follows deals with the need to address and eliminate stigma.
MENTAL ILLNESS
Mental illness is the single largest category of disease affecting Canadians.
Up to 20 percent of the population will experience mental illness at some
time during their lives. Mental illness carries a burden of substantial mortality
and significant morbidity. The World Health Organization reports that six
of the leading causes of years of life with disability are mental disorders
(Murray & Lopez, 1996). Despite dramatic improvements in physical health
in most countries, “… the mental component of health has not improved
over the past 100 years.” (WHO, 1999).
We know that:
Disability due to depression seriously affects 10 out of 100 people at some point in their lives along with their families and places of work, and is the leading cause of disease burden among women 15 - 44 years of age in the developed world
Only 1 out of 5 children who need mental health services receives them
Barriers to early intervention create situations that present high risk to the health of the vulnerable individual. Early symptoms may go unrecognized and long waiting lists often delay access to services.
Since the reforms of the mental health system of the 1960’s and 1970’s, tens of thousands of institutional beds have been closed, and many individuals with a mental illness have moved from chronic care facilities back into the community with little or no support and without appropriate transfer of institutional resources to community care systems. More recent closures of short-stay hospital beds did not for the most part correspond with an increase in resources for alternative community-based care.
The result? An increasing number of homeless people with mental illness, families and friends “stretched and distressed to the limit,” large numbers of people with mental illness languishing in jail and many others living in substandard housing or receiving their care in poorly-funded group home settings.
With so many individuals not receiving adequate services or supports, the time has come for all stakeholders including all levels of governments to come together to make a commitment to reform.
THE PROMOTION OF MENTAL HEALTH
For individuals to realize their full potential and contribute in meaningful ways to our society mental health is essential; yet, the lack of attention to mental health promotion across Canada is notable.
It has been well demonstrated that
a mix of psychological and social determinants affects health overall and
mental health in particular. Health Canada has listed these determinants as:
• income and social status
• social support networks
• education
• employment and working conditions
• social environments
• physical environment
• personal health practices and coping skills
• healthy child development
• health services
When these determinants of health are strong and in place, mental health is positively impacted. But when they are weak or missing, mental health problems can result. Thus, they suggest directions where interventions are possible.
At the level of the individual, a sense of control, social support and meaningful participation are important in helping to reduce stress, anxiety, “burnout” and frustration that are common today. At a system level, strategies that create supportive environments, strengthen community action, develop personal skills and reorient health services can help to ensure that the population has some control over the psychological and social determinants of mental health. (Willinsky & Pape, 1997).
It is essential for supports to be in place so that all Canadians, whether young or old, whether living with a mental illness or not, can maximize their mental health.
A greater emphasis on mental health promotion and prevention can reduce the demand on already overburdened systems. System reform is critical for the development of a strong, resilient and healthy population.
COLLABORATIVE NATIONAL
LEADERSHIP IS REQUIRED
“The burden of mental health related problems in the population has
been underestimated. Not only are they linked to certain physical illnesses
and increased mortality from suicide, they also bear a complex and poorly
understood relationship to many of the most toxic public health problems of
our day, such as interpersonal violence, criminality, addictions, homelessness
and poverty (Thompson & Bland, 1995). They are associated with significant
emotional suffering and disability, and have important but largely unrecognized
human and economic costs (Neugebauer, 1999).” (quoted in: Stuart, H.
et.al. 1999)
Other than addressing child wellness strategies, both the recent national debates around national health care reform (National Forum on Health, 1997) and around the social security reform (Improving Social Security in Canada, 1994) of the earlier 1990s were silent about mental illness and mental health issues. While the responsibility for planning and delivering mental health services rests with the provinces and territories, leadership provided by federal/provincial/territorial collaboration could go along way to begin to address these problems, while positioning Canada as a nation that regards the mental health of its citizens as a priority. Current legislation may indicate a responsibility on the part of the federal government to act on a national strategy.
The Canada Health Act states that:
…the primary objective of Canadian health care policy is to protect,
promote and restore the physical and mental well being of residents of Canada
and to facilitate reasonable access to health services without financial or
other barriers.
The Canadian Charter of Rights
and Freedoms states:
Every individual is equal before and under the law and has the right to the
equal protection and equal benefit of the law without discrimination based
on race, national or ethnic origin, colour, religion, sex, age or mental or
physical disability. Section A15. (1) and,
...does not preclude any law, program or activity that has as its object the
amelioration of conditions of disadvantaged individuals or groups including
those that are disadvantaged because of race, national or ethnic origin, colour,
religion, sex age or mental or physical disability. (2) Subsection (1)
While mental health care accounts
for as much as 16% of health care costs and directly affects 20% of the population:
• Health Canada’s program spending on mental illness and mental
health promotion combined is less than $500,000 per year.
• No distinct mental health division exists at Health Canada to develop
and steer national policy and discussions in this area at a senior management
level.
• Only about 4% of all public research dollars go to mental illness
and mental health research.
• Canada does not collect, in a systematic manner, national data on
the mental health status of Canadians.
Many stakeholders are finding the
“invisibility” intolerable and are uniting to bring about a national
presence in mental illness and mental health.
II. WHY NOW?
LONG TIME… INSUFFICIENT ATTENTION
It has been nearly 40 years since recommendations for reforming mental health care were presented to the Hall Commission.
‘‘Of all the problems presented before the Commission, that which reflects the greatest public concern, apart from the financing of health services generally, is mental illness...” (Royal Commission on Health Services, 1964). This concern resulted in three decades of deinstitutionalization and the closure of tens of thousands of inpatient beds, but without the corresponding funding and development of adequate and appropriate community-based services and supports.
• The City of Toronto report on homelessness, chaired by Anne Golden, describes homelessness as a significant result of the deinstitutionalization policies. The homeless have many faces: people who have mental illnesses, people who suffer from alcohol and substance abuse, and the plight of Aboriginal peoples who are over-represented in the homeless population compared to the general population. (Stuart, et. al, 1999)
• It has been ten years since the federal government released: “Mental Health for Canadians: Striking a Balance.” Its policy document linked the national health promotion vision of “Achieving Health for All” to mental health. Other major reports together with numerous provincial and regional policy and discussion documents have recommended significant changes to improve services and programs for: individuals with serious mental illnesses; children’s mental health services; suicide prevention; aboriginal peoples; and offender and prison populations. Few of the recommendations and ideas have been implemented.
• More recently in 1997, the Federal/Provincial/Territorial Advisory Network on Mental Health (ANMH) commissioned a two-phase study that focused on a critical evidence-based review of the current state of knowledge related to best practices in mental health reform focusing on chronic and severe mental illness, along with a situational analysis of mental health reform policies, practices and initiatives in Canada that approximated best practices. The reports’ recommendations are aimed at building an integrated system of care for the severely ill. While some provinces are working to adopt best practices approaches, the funding and commitment to support accountability, research and evaluation elements remain elusive.
RENEWED INVESTMENT IN HEALTH : THE HEALTH CARE FUNDING DEBATE
In the year 2000, health care has become a priority for all levels of governments and the public. At the same time, the burden and cost of mental illness and mental health in Canada is starting to be acknowledged. But reinvestment into health by all levels of governments MUST include significant investments in mental illness needs and mental health promotion supportive of the front line needs and delivery of services for which provinces are responsible.
As part of this reinvestment, mental health human resources must be addressed; the current shortage of specialized professionals and non-professionals will only get worse without strategic planning. Many professional workers are continuing to leave Canada to pursue careers elsewhere. How professionals must work is changing. For example, psychiatrists have been traditionally trained for hospital and private practice, rather than working in community-based agencies or non-hospital centered clinics and shared care models. Some non-professional mental health workers lack appropriate training for new roles. The training of mental health workers focuses little attention on mental health promotion.
A concerted effort must take place to ensure that a balanced mix of services and support are equally comparably available at similar levels of quality in all regions of the country. An infusion of capital funding will ensure that people living with mental illness and mental health can live with respect and dignity in an environment that will reflect a high standard of quality of life. Reform strategies in attracting and maintaining excellent mental health human resources are essential.
A FRAGMENTED VOICE, A FRAGMENTED SYSTEM
Prior to the creation of CAMIMH, there was no co-coordinated and concerted citizen’s action around mental illness and mental health issues at the national level. Advocacy in this area was generally illness or population-specific (e.g., related to schizophrenia, mood disorders or children’s mental health). There was no clear, common, strong voice to advocate for overall mental illness and health needs. CAMIMH is attempting to fill this void.
There are a variety of factors that led to fragmentation of the non-governmental sector of the mental illness and mental health community, including uneven funding. In part, the NGO sector mirrors the service and policy sector itself. While mental illness care, treatment and support services and mental health promotion initiatives, more than any other health care area, cross over numerous policy and program areas, these too often operate as silos. Moreover, the linkages between health and social policy required for effective mental illness and mental health policy development never developed at the national level.
A healthy public policy approach to mental health policy development would go a long way to mitigate the negative impact of a fragmented sector on mental illness care and the mental health of Canadians.
CANADA LAGS BEHIND IN WORLD PROGRESS
The United Kingdom
The United Kingdom (UK) followed its “The Health of the Nation” White Paper in 1992 with action plans in five key health areas, one of which was mental health. The “Mental Health Key Area Handbook” (1994), as the action plan is called, provides practical advice to health system managers on implementing the changes necessary to achieve the targets for the mental illness key area. The primary mental health targets set out in the UK White paper were:
• to improve significantly
the health and social functioning of mentally ill people
• to reduce the overall suicide rate by at least 15% by the year 2000;
and
• to reduce the suicide rate of severely mentally ill people by at least
33% by the year 2000.
The UK action plan provides action summaries and implementation guidelines based on the best available evidence in the following areas:
• Promotion of mental health
and reduction of stigma attached to mental illness
• Systematic needs assessments and reviews of service provision at local
levels
• Wide local consultation on developing strategies at the local level
• Effective joint planning and servicing between the health social service
systems
• A systematic and planned approach to the transition from institutional
to community care using care management approaches
• Development of human skills and resources (staff development, multidisciplinary
teams, closer collaboration between primary and secondary care sectors) to
increase awareness, detection and treatment.
• Implementation of effective mental health information systems
Source: UK Department of Health. Health of the Nation: Key Area Handbook: Mental Illness, 2nd edition. 1994.
Australia
In 1992, Australia made a decision to adopt a “National Mental Health Policy and Plan.” This followed an earlier endorsement of a Statement of Rights and Responsibilities, and these two documents together formed a National Mental Health Strategy. This strategy commits all state, territorial and Commonwealth governments within Australia to improve the lives of persons with mental illness.
The aims of the Australian National
Mental Health Strategy are to:
• Promote the mental health of the Australian community
• Prevent the development of mental health problems and mental disorders
where possible
• Reduce the impact of mental disorders on individuals, families and
the community
• Assure the rights of people with mental disorders
The strategy provides a national framework for mental health reform. It addresses such key issues as: the provision of integrated mental health services; intersectoral links; consumer rights; legislation; workforce reform; monitoring and accountability procedures; and the requirements of special needs groups such as people of Aboriginal descent.
New Zealand
New Zealand developed an action plan focused on mental health promotion in 1997, after setting the following core objectives for mental health in that country.
• To promote the mental health
of its populations (including specific reference to Aboriginal peoples)
• To reduce the death rates and disability from depression.
New Zealand decided not to set outcome targets until it had established adequate baseline data. Its plan is to develop a series of issue papers that provide program planners with guidelines and overviews of what is known and what works.
New Zealand’s plan addresses
four main issue areas:
• healthy public policy issues
• public health program issues
• personal health services issues
• research and information issues
United States
The United States process is the most recent and flows out of its federal government’s desire to set a national health agenda for the new millennium. In “Mental Health: A Report of the Surgeon General” (1999), a commitment is made to advance the state of mental health within the country. Key aspects of this initiative are a national anti-stigma campaign, a call to action on suicide prevention and a commitment to improving the accessibility, availability and quality of mental health services. This is envisaged as a decade-long action agenda and is being developed with input from a broad consultation process that includes a state component.
Canada has the legislative and policy tools needed to undertake
a national plan and catch up with what these nations have done recently.
Canada must join other countries in their acknowledgment that mental illness and mental health are priorities for the health of any nation!
THE SOCIAL UNION FRAMEWORK:
PARTNERSHIP OPPORTUNITIES BETWEEN
THE FEDERAL GOVERNMENT AND THE PROVINCES
Canada’s adoption of the Social Union Framework in February 1999 has created a vehicle by which the provinces and the federal government can work together on issues of national importance. It has potentially broken the longstanding impasse or inability to develop ‘collaborative national’ (federal, provincial and territorial) strategies on social and health issues. The framework’s commitment to begin this work by addressing child and disability issues, together with Canadians’ and governments’ recognition and support for reinvestment in health, provide an excellent opportunity for using the Social Union Framework to advance a national mental illness and mental health agenda.
The Children’s Agenda that was initiated by a few provinces has now become a priority endorsed by all provinces and the federal government using the Social Union Framework approach, enabling the development of a national position and implementation process.
National leadership in partnership with the provinces can be implemented in a number of other ways. For example, following the calls for action by municipalities and community agencies for national leadership on the homeless crisis, the federal government launched the “Supporting Communities Partnership Initiative.” It includes a substantial federal investment to engage all levels of government and partners to develop the tools needed to tackle the problem of homelessness and to put in place the seamless web of services and supports that people need to make a successful transition from the street to a more stable and secure life. Minister Bradshaw stated, “Community groups want the Government of Canada to be a partner in a national effort to eliminate homelessness. This effort, in order to be successful, must be a partnership between all orders of government and the private and voluntary sectors.” (Minister of Labour, December 1999). Prior to the Social Union Framework Agreement, the federal government developed national strategies in collaboration with the provinces, territories and community stakeholders on a range of important national health issues, such as AIDS, women’s health and tobacco. The Federal/Provincial/Territorial Advisory Network, consisting of senior mental health managers in each province and territory and which is once again linked to the Federal/Provincial/Territorial Health Ministers’ Committee structure, can also be instrumental in facilitating the cross jurisdictional collaboration needed for the development of a ‘national action plan on mental illness and mental health’ in Canada.
With national leadership and provincial partnerships as well as successful completion of the consultation process associated with this discussion paper, CAMIMH believes it is possible to devise and implement a coordinated national action plan for mental illness and mental health in Canada.
While respecting the jurisdictional
issues involved in the provision of mental health services and for the implementation
of mental health promotion strategies, a national strategy is long overdue
and possible.
III. A FRAMEWORK FOR ACTION
INTRODUCTION
This discussion paper is the first step toward the development of consensus
for a national action plan on mental illness and mental health. The process
for coming to a consensus among the representatives of CAMIMH on what should
be put forward in this paper started with a consensus on core values, and
a vision for the future as a foundation to strategies for action. These are
appended at the end of the document.
Each component of this framework section includes a brief discussion of the
current situation and what is needed, followed by some suggested goals and
options for action. These goals and options for action are intended to facilitate
discussion, stimulate new ideas and build consensus during a national consultation
process. We invite your own ideas and comments.
The four components or 'anchors' of the framework for national action are:
• Public Education and Awareness
• National Policy Framework
• Research
• National Information - Data System
A. PUBLIC EDUCATION AND
AWARENESS
Goal A1:
Reduce the stigma associated with mental illnesses in Canadian society.
Options for Action
Develop an effective national public awareness strategy that would include
initiatives to:
• Develop national education materials and dissemination strategies
about the nature of mental illnesses and the impacts on individuals, their
families and Canadian society.
• Encourage and support ministries of education to integrate mental
illness and mental health issues into school curricula.
• Involve consumers of mental health programs and services in the development
and implementation of national strategies.
• Work with members of the justice system to increase their awareness
of the nature of mental illnesses and to develop and provide alternatives
to the incarceration of individuals with mental illnesses.
• Work with members of the media to provide responsible public information
and raise awareness regarding mental illness including its prevention.
• Create a national clearinghouse for information on mental illness
and mental health.
Goal A2:
Increase public knowledge and awareness about effective practices in the fields
of mental illness and mental health.
Options for Action
• Develop a national campaign to raise people’s awareness regarding
mental illness and health programs and services and when and how to access
appropriate care and support.
• Develop and promote an interdisciplinary Speaker’s Bureau.
• Co-ordinate a national public education and awareness campaign that
provides regular ‘snapshots’ of the state of mental health and
mental illness policies, programs and outcomes for Canadians.
• Develop a national campaign to educate the public on the value of
mental health and well-being.
B. National Policy Framework
An essential component of the discussions leading toward a National Action
Plan, a comprehensive cross jurisdictional policy framework, need not intrude
on provincial powers; rather it can and should evolve out of a consensus among
all stakeholders including governments.
Goal B1:
Legislative/Policy Initiatives—Ensure that the impact on mental illness
and mental health is considered in the development and implementation of every
federal policy and legislative initiative.
Option for Action
• Guided by the provisions of the Canada Health Act, empower a federal/provincial/territorial
working group (working in collaboration with a stakeholder advisory group)
to develop and adopt criteria that can be used to assess the mental illness
and mental health impact of new and current policy and legislative initiatives.
Goal B2:
National Guidelines, Benchmarks & Accountability—Establish and adopt
national guidelines or benchmarks for key outcome areas of a desired mental
health system and for mental health promotion.
Guidelines or benchmarks can be developed in a manner that respects provincial
jurisdiction over health services while helping to assure Canadians, no matter
where they live or what their economic circumstances, similar access to professional
and community supports and programs based on local need and culture.
Options for Action
• Develop guidelines for stakeholder involvement (e.g., consumers, families,
providers) to ensure their input into policies and programs that have a mental
illness care or mental health component.
• Develop guidelines that ensure an appropriate balance of services/supports
is available according to community need.
• Develop guidelines for effective (best) practices/outcomes for mental
illness care systems, as well as mental health prevention and promotion programs.
• Develop outcome guidelines or targets for research, evaluation and
innovation.
• Develop national mental health benchmarks or guidelines that ensure
access to mental illness services and mental health promotion programs are
consistent with the provisions of the Canada Health Act.
• Develop a national report card that would include a regular review
of provincial mental health services & Acts and their use.
• Encourage the utilization of accreditation systems that measure adherence
to best practice standards, guidelines & benchmarks.
• Develop guidelines for mental health promotion strategies for all
Canadians.
• Evaluate the extent to which public health programs deliver mental
health promotion programs.
Goal B3:
Integration and Collaboration—Develop collaborative and cooperative
partnerships that will enhance systems of care and mental health promotion
opportunities.
Options for Action
• Build on the call for policy co-ordination contained in The Mental
Health of Canadians: Striking a Balance (1988).
• Harmonize policies that affect mental illness care services and mental
health promotion strategies across all levels of government.
• Promote the formation of interdisciplinary partnerships among health
professionals working together with mental illness and mental health communities
by:
• i. Developing incentives that support partnerships among mental health
professionals, caregivers, consumers, families and community support services
in the planning and delivery of mental illness and mental health programs
and services.
• ii. Developing cost-sharing arrangements for specific services among
community agencies.
• iii. Promoting community participation in the planning and delivery
of mental illness and mental health programs and services.
Goal B4:
Consumer and Family Participation - Strengthen consumer and family participation
in national policy development affecting mental illness services and supports
as well as mental health promotion.
Options for Action
• Strike a federal advisory group or expert panel of consumers and family
members to provide ongoing input into the mental illness and mental health
components of federal policies.
• Develop guidelines that encourage meaningful participation of stakeholders
in mental health policy development.
• Identify the increased resources needed to support meaningful and
effective consumer and family involvement in mental health policy development.
• Set up round tables including federal/provincial/territorial/aboriginal/
consumer/family representation to develop the targets or benchmarks
Goal B5:
Promotion of Self-Help—The federal government recognizes consumer and
family self-help as a significant and vital mental health resource.
Options for Action
• Develop federal guidelines to ensure that consumers and families are
supported to develop their own groups and organizations.
• Build on the recommendations regarding consumer and family self-help
in the Best Practices reports (1997).
• Develop guidelines for effective practice mechanisms that help increase
the knowledge and skills of consumers and families.
Goal B6:
Innovative Models of Service Delivery—Encourage and facilitate the piloting
and testing of, and dissemination of information about new and innovative
models of delivering mental illness/health services based on effective practices.
Options for Action
• Support the development, implementation and evaluation of innovations
in the provision of services for people with mental illness and for mental
health promotion.
• Investigate the need for, and support the development, implementation
and evaluation of, new approaches to support interdisciplinary collaborative
practice and make recommendations on the nature of the required changes. (E.g.,
“Shared Care,” Kates et al., October 1997). Issues that should
be explored include: alternate methods for remunerating psychiatrists; changes
to provincial fee schedules to cover services rendered by family physicians,
psychiatrists, nurse clinicians etc. that do not involve direct patient care;
and providing incentives to encourage family physicians to spend time with
patients who have complex psychiatric disorders and other emotional problems.
Goal B7:
Human Resources Develop a national mental illness and mental health human
resource plan to the year 2005.
Options for Action
• Establish a multi-stakeholder task force that reports to the Federal
Provincial Territorial Advisory Committee on Health Services to develop a
mental illness and mental health human resource plan for Canada, so that high
quality appropriately trained mental illness and mental health service providers
are available to meet the health needs of Canadians. For example:
• i. identify the numbers of current mental health workers (professional
and non-professional) in Canada
• ii. identify the mental health human resource needs for the next 25
years
• iii. develop recommendations for a detailed national human resource
plan for mental health workers (professional and non-professional)
• iv. develop standards/guidelines for front-line mental health workers
related to basic education/experience, number and service mixes
• v. involve mental health consumers in the education and training of
mental health care workers.
• Create a national task force to review and make recommendations on
improving the training and knowledge of mental health intervention strategies
including multidisciplinary approaches to mental illness, and effective mental
health promotion strategies. The task force should subsequently monitor or
steer the implementation of these recommendations. The areas for review would
include such strategies as:
• i. the extent to which mental health issues and mental health promotion
are part of the curricula of training of all health professionals
• ii. the extent to which Continuing Education programs (CE) provide
mental health promotion topics in an integrated manner
• iii. the exposure of students to effective practice role models
• iv. the extent to which undergraduate education on mental health promotion
and prevention is available within the health disciplines at the university
and college levels, as well as related education and social work programs
• v. the extent to which there are interdisciplinary opportunities for
joint education (undergraduate, graduate and continuing education).
C. RESEARCH
Mental health research commands less than 5% of Canadian health research dollars,
yet mental illnesses directly affect 20% of Canadians. There is a lack of
co-ordination among research funding bodies, and no organized mental illness
and mental health research agenda in Canada. Few private research institutions
or community organizations/foundations fund mental illness and mental health
research, and universities tend to favour placing their fundraising dollars
into physical health and illness research. As other research sectors also
argue, Canada must do much more to foster the interest and careers of its
young researchers and the research community in general in Canada. This is
especially needed in the mental illness and mental health research fields,
where support remains fragmented and woefully inadequate. We must set higher
targets for research funding and in this area, so that it reflects the burden
of mental illness and the contributions to population health that improved
knowledge and practices in mental health promotion can offer.
Goal C1:
Establish and support a national research agenda.
Options for Action
• Under the Canadian Institutes of Health Research (CIHR) create a Canadian
Institute of Mental Illness and Mental Health Research (CIMIMHR) to ensure
the co-ordinated development and appropriate funding for mental illness and
mental health research.
• Create a set of priorities and research questions for mental illness
and mental health on an annual basis. Proactively encourage researchers and
funders to address the annual research questions.
• Monitor funding levels for mental illness and mental health research
in Canada on an annual basis.
• Foster collaborative networks of research across sectors.
Goal C2:
Establish and implement a public education and awareness strategy to support
comprehensive and sufficient research funding and value research.
Options for Action
• Facilitate the establishment of communication strategies that include
a national research newsletter discussing all aspects of national research.
• Facilitate the development and the dissemination of an Annual Research
Report Card.
Goal C3:
Strengthen the voluntary fundraising sector so that it demonstrates a unified
commitment and enhanced support for mental illness/health research.
Options for Action
• Create an umbrella of research foundations to address mental illness
and mental health research fundraising in a co-ordinated manner.
• Work with existing fundraising foundations and university institutes
to establish annual fund-raising campaigns with specified funding goals to
support mental illness and mental health research.
Goal C4:
Increase the cadre of new mental illness and mental health researchers.
Options for Action
• Identify, strengthen and support research-training programs through
scientist support programs, fellowships, and postgraduate and graduate support
programs.
• Nurture community researchers and promote the creation of annual community
research awards in mental illness and mental health.
Goal C5:
Create a more supportive environment for Canadian researchers in mental illness
and mental health research.
Options for Action
• Establish an annual scientific symposium showcasing research in mental
illness/health.
• Advocate for national and provincial funders to allocate a fair share
of their money to mental illness and mental health research.
• Encourage universities to allocate more dollars toward mental illness
and mental health research.
• Foster collaborative partnerships and networks across research sites
and sectors.
Goal C6:
Ensure that mental illness and mental health research informs policy development
in all areas of health.
Options for Action
• Ensure mental illness and mental health researchers identify the policy
implications of their research findings as a condition of funding.
• Facilitate the dissemination of research findings in the mental illness
and mental health area to policy makers.
Goal C7:
Increase the involvement of consumers, other stakeholders and their organizations
and the voluntary sector in the development, implementation and dissemination
of the knowledge acquired through enhanced mental illness and mental health
research.
Options for Action
• Establish and support a national consumer/family members participatory
research strategy focusing on non-medical/clinical methods to assist recovery
and maintain well-being.
D. NATIONAL DATA/INFORMATION
SYSTEM
Canada currently lacks a national information base to enable us to accurately
identify both the incidence and prevalence of mental illness, to measure the
mental health status of Canadians and to assist in the evaluation of our mental
health/illness policies, programs and services. We need to collect and assemble
data (surveillance system) that protects individuals’ confidentiality,
as well as develop a system for ongoing accountability (report card). The
information collected nationally would be used to help Canada monitor and
report periodically (e.g. annually), how well we are meeting the needs of
persons with mental illnesses and in promoting the mental health of Canadians.
This reporting process in turn would inform policy and program choices nationally,
provincially, regionally and locally. It would also ensure the information
that is collected is broadly disseminated and accessible to anyone who needs
or desires it.
Goal D1:
Create a national public health surveillance and reporting program in collaboration
with other stakeholders, including the Laboratory Centre for Disease Control
(LCDC).
Options for Action
• Develop benchmarks or standards for the collection of mental illness
and mental health data that include privacy provisions.
• Develop a framework for data collection and reporting on mental illness
and mental health in Canada.
• Improve the co-ordination of information collection across provinces
and across regions in Canada.
• Support and collaborate with a national public education and awareness
program to provide regular ‘snapshots’ of the state of mental
health and mental illness policies, programs and outcomes for Canadians.
IV. Conclusion
The important role of self-help groups in contributing both to the healing
and restorative processes, as well as to the positive mental health of people
during times of crisis and in enhancing coping with chronic illness, is only
now being recognized and acknowledged as having real value. Voluntary organizations
focusing on mental illness and mental health issues, whether regrouping consumers,
families, front line providers, community agencies or professionals, have
a wealth of knowledge to be tapped.
Civil Society is commonly defined as the social sphere outside of government
and the private sector that is composed of groups or associations of people
that have been formed to further the interests of their members. For NGOs
(non-governmental organizations), “Building civil society involves citizens
working in partnership with government and business at all levels of society.’
Many NGOs act as “bridge builders”, as facilitators and as catalysts
for change to advance the interests of ‘marginalized’ groups.
They engage people on issues that are important to them, commit to action,
generate new ideas and solutions to issues of common concern and build public
support for collective decisions and action. (Burbidge, 1997; Canadian Council
for International Cooperation, 1996).
CAMIMH is an example of five NGOs, reflecting a range of perspectives and
roles in mental illness care and mental health promotion, that have joined
together to advance the interests of Canadians with a mental illness, their
families and caregivers and to advocate for the principle that all Canadians
are entitled to good mental health. Today in Canada many individuals with
mental illnesses are living lives of desperation, fear and pain. We know that
Canadians would care if they were aware of the critical nature of the situation.
Our governments are aware of the issues, but have not placed a high priority
on mental illness and mental health.
Just as broad-based strategies by government and stakeholders have been able
to counter the initial response of fear and stigma to HIV/AIDS, we are looking
for a similar collaborative process facilitated by government. We know what
needs to be done and we know how to do it! What we need now is the political
will and support to make it happen.
This framework paper is our beginning to foster a national consensus building process. We need your feedback on our work. We need your best thinking. Please help and share your views on our CALL FOR ACTION. We invite your input! We ask for your support!
Please send your comments to CAMIMH
by:
E-mail: camimh@cpa-apc.org
Fax: 613 234 9857
Mail: 441 MacLaren Street, Suite 260, Ottawa, Ontario, K2P 2H3
Website: http://www.cpa-apc.org
GLOSSARY OF SOME KEY TERMS
Mood Disorder - disturbance in mood as predominant feature (major depressive,
dysthymic, other depressive, bipolar I, bipolar II, other bipolar, mood disorder
due to medical condition, mood not otherwise specified). (DSM IV, American
Psychiatric Press)
Consumer - “ A person who has experienced significant mental health
problems and has used the resources of the mental health system.” (Canadian
Mental Health Association, National Consumer Advisory Council, 1991) - “...
an individual who has, or has had at some point in his/her life, a personal
mental health problem and had occasion to use formal or informal mental health
services.” (Mental Health Consumer Advocacy Network Nova Scotia and
the Self-Help Connection, 1992).
Determinants of Health - include the following: income and social status,
social support networks, education, employment and working conditions, physical
environment, biologic and genetic endowment, personal health practices and
coping skills, healthy child development and health services. (Health Canada,
1994).
Individual Empowerment - “refers to an individual’s ability to
make decisions and have control over his or her personal life” (Israel
et al., 1994).
Incidence - is the number of new cases of a particular illness or disease
within a given population.
Integration - is the linking of services offered by two or more organizations
or agencies. This may involve the offering of joint or combined services.
(The Report of the Working Group on Mental Health, NS, 1992).
Mental Health - “By definition, mental health refers to a state of psychological
well-being and integration.” (The Report of the Working group on Mental
Health, NS, 1992).
Mental health problem - “... is a disruption in the interactions between
the individual, the group and the environment. Such a disruption may result
from factors within the individual, including physical and mental illness,
or inadequate coping skills. It may also spring from external causes, such
as the existence of harsh environmental conditions, unjust social structures,
or tensions within the family or community.” (Health and Welfare Canada,
1988).
Mental health promotion - “... is the process of enhancing the capacity
of individuals and communities to take control over their lives and improve
their mental health.” (University of Toronto, Centre for Health Promotion,
1997). “Mental health promotion is oriented towards building strengths,
resources, knowledge and assets for positive health, with the people concerned
controlling issues and processes. It focuses on the enhancement of well-being,
rather than on illness.” (Joubert, N., Taylor, L. & Williams, I.,
1996).
Mental illness or mental disorder - “... may be defined as a recognized,
medically diagnosable illness that results in the significant impairment of
an individual’s cognitive, affective or relational abilities. Mental
disorders result from biological, developmental and/or psychosocial factors,
and can - in principle, at least, be managed using approaches comparable to
those applied to physical disease (that is, prevention, diagnosis, treatment
and rehabilitation).” (Health and Welfare Canada, 1988).
Prevalence - is the total number of cases of a particular illness or disease
within a given population.
Prevention in the Mental Illness Field - “... seeks to eliminate those
factors that cause or contribute to the incidence of mental illness.”
(Willinsky & Pape, 1997).
Public Policy - is the broad framework of ideas and values within which decisions
are taken and action or inaction is pursued by groups, agencies and governments
in relation to some issue or problem.
Resilience - “... is the ability to bounce back from life’s difficulties.”
(Willinsky & Pape, 1997).
Schizophrenia - is a biological brain disease that affects thinking, perception,
mood and behaviour. Its exact cause is unknown, but overwhelming scientific
evidence points to faulty brain chemistry or structural abnormalities in the
brain.
Self-help - “…Self-help is one way to deal with the problems that
everyone faces from time to time in their lives. Talking our problems over
with other people who have lived through similar ones can provide support
and help us cope with today’s difficulties. Self-help is really mutual
aid. When we give of ourselves, we not only help someone else, we help ourselves
as well.” (Self-Help Connection “How to” Manual, Halifax,
1990). “Self-help or mutual aid is a process wherein people who share
common experiences, situations or problems can offer each other a unique perspective
that is not available from those who have not shared these experiences.”
(International Network for Mutual Help Centres).
Stigma - is defined as a ‘mark of shame or discredit.’ People
with mental health problems are often stigmatized due to lack of knowledge,
misinformation and fear. Negative stereotypes and discrimination towards people
who experience mental health problems continue to exert an unfortunate influence
on us all. (Canadian Mental Health Association, Nova Scotia Division, 1993).
Public Health Surveillance - “ is the on-going, systematic collection,
analysis and interpretation of health data in the process of describing and
monitoring a health event closely integrated with timely dissemination of
information to those who need to know. This information is used for planning,
implementing and evaluating public health interventions and programs. Surveillance
data are used to determine the need for public health action and to assess
the effectiveness of programs.” (Centres for Disease Control and Prevention,
Guidelines for Evaluating Surveillance Systems)
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APPENDIX A
A Consensus Among Non-Governmental Stakeholders on Underlying Values and Vision....
A New Basis For Mental Illness and Mental Health Reform
A new voice has emerged in Canada - a unified consumer, family, community
and professional national voice that came together through CAMIMH (the Canadian
Alliance on Mental Illness and Mental Health) out of a common desire to get
mental illness and mental health on the national health and social policy
agendas.
CAMIMH’s MISSION
To facilitate and promote the establishment and implementation of a ‘Canadian
action plan on mental illness and for mental health’ that reflects a
shared national vision for meeting the needs of persons with mental illnesses
and enhancing the potential for the positive mental health of Canadians.
Core Values
1. We believe in a Canada free of the stigma associated with mental illness.
2. We believe in people’s capacity to help themselves and each other.
3. We believe in preserving confidentiality and in informed consent (for treatment
purposes).
4. We believe in promoting optimal mental health for all Canadians.
5. We believe that the knowledge base ABOUT mental illness and mental health
must reflect a variety of perspectives (e.g., different disciplines, consumers
and families).
6. We believe that mental health and illness programs and services should
be based on effective (best) practices.
7. We believe in the meaningful participation of people with mental illness,
together with their families and with professionals, at all levels of mental
health planning, policy development and service delivery.
8. We believe that all Canadians with mental illnesses have an equal right
to access and continuity of quality health care, social supports** and the
elements of citizenship. ***
9. We believe mental health and mental illness are the responsibility of every
level of government.
10. We believe in a publicly funded and equitable health care system serving
all Canadians including those with a mental illness, their families and caregivers.
11.We value the diversity of cultures in Canadian society and believe that
our mental health and illness programs and policies need to reflect this richness,
as well as the uniqueness of each individual.
12. We believe in the importance and availability of a wide range of resource
options (e.g., self-help groups, families, hospitals and community clinics)
for the promotion of mental health and for the prevention, treatment and rehabilitation
of persons with mental illnesses.
** Social Supports are family, friends and self-help groups.
*** Elements of citizenship include work, housing, education and income.
DESIRED FUTURE
We can look forward to a Canadian Society where:
• Canada is “stigma free” with regard to mentall illness
• Canadians with mental illness are no longer left to roam the streets
• People with mental illness are no longer languishing in jails
• People feel free to speak about their mental illness and no longer
face discrimination
• People with mental illness are valued and treated with dignity
• Research has made great strides in preventing, treating and curing
mental illness
• Canadians with a mental illness are allowed to be valued contributors
to our society
• All people with a mental illness who need assessment, treatment, rehabilitation
and support receive these services
• The impact of mental illness and mental health on the quality of life
is finally understood and accepted
• We understand and value our mental health as much as our physical
health
OUR VISION
By 2005, we see
• A Canada-wide policy framework for mental health reform in place at
all levels of government.
• Canada-wide objectives and priorities for mental health promotion
and mental illness prevention and care.
• An appropriately funded, integrated, accessible system that provides
the continuum of care (i.e., mental health promotion, mental illness prevention,
treatment, rehabilitation, consumer initiatives, community care and support)
that is supported by research, an information base, as well as public and
professional education.
• A system that focuses on meeting the diverse needs of individuals
and families.
• A system based on meaningful partnerships among consumers, families,
professionals and communities.
• A system accountable to its stakeholders by providing an annual mental
health progress report.
We acknowledge the omission of the perspectives of specific groups, and especially
of aboriginal peoples, in the above vision. As we do not currently have representatives
of these groups as members of CAMIMH, we require consultation with such groups
at a future phase in our process to ensure their needs and concerns are appropriately
addressed and included.
APPENDIX B
This discussion paper is the first step toward the development of consensus
for a national action plan on mental illness and mental health. It is a tool
to facilitate discussion, stimulate ideas and build a strong national coalition
to promote its implementation by all levels of government.
The process for coming to a consensus among the representatives of CAMIMH
started with coming to a consensus on core values and a vision for the future
of how Canada will meet the needs of persons with mental illnesses and promote
the positive mental health of Canadians.
Please engage in discussions around this paper to join CAMIMH’s consultation
process with a broad range of stakeholders to help expand, strengthen and
build on the initial ideas in this paper and to develop a wide consensus on
an action plan for Canada.
QUESTIONS FOR DISCUSSION
Part 1: Values, Vision, Desired Future
1. Which of CAMIMH’s values do you most strongly support and why?
2. Which values do you least support and why?
3. What changes (if any) would
you suggest so that these better reflect your own values or those of your
organization/group?
4. Are there any elements of this desired future to which you are less committed
than others? If so, which ones are you the least committed to and which are
you the most committed to/attached to?
5. Are there any other elements that you would like to see added to the desired
future? If so, what are they?
6. Do you believe this vision is achievable? ? Yes ? No
If yes, why? If not, why?
7. Does the vision capture the most important changes to the system you/your
organization would like to see to further mental health and illness in Canada?
Yes ? No ? If yes, why? If no, why?
8. Is there anything you would change about this vision?
Yes ? No ? If yes, why? If no, why?
9. What changes would you suggest to make this vision more relevant to you
and/or your organization/group (e.g, what would you add, remove or modify)?
Part II: Framework for Action
10. Of the four Areas for Action suggested for the Framework for Action above,
the one that is most relevant to my organization’s or community’s
priorities is:
11. Do you think the four areas capture the most critical areas for action
that can be taken at a national level?
Yes ? No ? If not, what other areas would you like to see included?
12. Are there goals you would like to add to any of the four areas? If so
please specify.
Public Education and Awareness:
Policy Framework:
Research:
National Information-Data System:
13. Are there any goals you would like to see removed in any of the action
areas, and if so which ones and why?
Public Education and Awareness:
Policy Framework:
Research
National Information-Data System:
14. Are there options for action you would like to add to any of the goals,
and if so please specify?
Public Education and Awareness:
Policy Framework:
Research:
National Information-Data System:
15. Are there any other gaps or concerns you or your organization has regarding
the suggestions in any the above Areas for Action? If so, please outline which
ones and your suggestions for change.
16. I/we would offer the following suggestions to improve the Framework for
Action:
17. Do you have suggestions with regard to getting a meaningful national mental
illness and mental health action plan adopted in Canada? What are the barriers
and how do you think these can best be overcome?
Hold a workshop or take some time out of your group's regular agenda to discuss
the paper. Report on the results using this questionnaire as a guide. Feel
free to provide general comments as well.
Please return your comments to CAMIMH by:
E-mail: camimh@cpa-apc.org
Fax: 613-234-9857
Mail: 441 MacLaren Street, Suite 260, Ottawa, Ontario, K2P 2H3
Web site: http://www.cpa-apc.org/public/camimh.asp
OTHER CAMIMH DOCUMENTS AVAILABLE UNDER SEPARATE COVER
A: Working Model for a Canadian Institute on Mental Illness and Mental Health
Research
B: Development of a Canadian Mental Illness and Mental Health Surveillance
System: A Discussion Paper