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No Miracles As
Yet
People with Disabilities Still Treated Unfairly
CCD’s Presentation
to
Parliamentary Sub Committee on the Status of Persons with Disabilities
Regarding Disability Tax Credit
November 20, 2001
BACKGROUND:
The Disability Tax Credit (DTC) has been and remains of critical
concern for persons with disabilities. The community has worked
long and hard to find ways of improving the tax treatment of disability
and ensuring greater fairness. Work must continue and both the Department
of Finance and Canada Customs and Revenue Agency must work with
the community to ensure that the additional financial burden resulting
from disability is not borne by the individual or his or her family
but by society as a whole. Incremental improvements have been made
over the years but “incrementalism” at some point without
an over all vision can create greater inequities rather than greater
fairness. Tax reform is a blunt instrument for addressing social
policy. Report after report acknowledges there is no “silver
bullet” solutions to the barriers that people with disabilities
face. Repeatedly the community identifies the need for flexible
program design, less medical orientation, greater ability to respond
to individual needs. These are not attributes of the tax system.
Conversely it is rigid, slow to respond and can at present only
address the needs of those with a taxable income, that being those
who are relatively better off. A broad review of the tax treatment
of disability overall is required and would be welcomed by people
with disabilities and their organizations.
A starting point for
the discussion of the DTC is the 1996 Report of the Task Force on
Disability Issues.
TAKEN FROM THE REPORT OF THE FEDERAL TASK FORCE ON DISABILITY ISSUES
These were the recommendations
of the Federal Task Force on Disability Issues in their report of
1996. Essentially they provided the rationale for the Disability
Tax Credit (DTC) and the principles by which it should be implemented.
They also provide recommendations for increasing the value of the
DTC which this government has done, for allowing transfer of the
DTC to any supporting person, and expansion of the list of professionals
who might certify an individual as eligible. These recommendations
have been implemented to a certain extent however, if the DTC were
evaluated against meeting the original objective of offsetting the
additional costs of disability it would fall far short of that goal.
FROM EQUAL CITIZENSHIP FOR CANADIANS WITH DISABILITIES:
THE WILL TO ACT.
“Chapter Seven;
Dealing fairly with the costs of disability
Living with a disability
almost always entails additional costs. These costs which vary significantly
from one individual to another, are currently paid for by the public
system, by a private insurer, or by the person who has a disability.
A person with a disability may need to cover the cost of a special
diet or nutritional supplements. There are extra costs to make one’s
home accessible, or for personal supports and services, technical
aids and devices, and the intangible costs associated with daily
living that are greater because of disability.
Participants in our consultations
made us aware of these in several ways. Some people pointed out
the problems they experience in gaining access to disability-related
supports and services that respond to their individual needs. Others
described costs that varied significantly from one part of a province
to another, or from one province to another. In turn, the discrepancies
between ways of compensating for the additional cost of disadvantage
meant that many people with disabilities could not move to another
province without jeopardizing their access to supports and services
or assuming additional costs that had been paid for by their province
of origin.
We recommend…
41. The Government of
Canada should recognize that measure that deal with the costs of
disability need to be separated from measures that provide income
to persons with disabilities.
Taxation And the Costs of Disability
The federal government should take action to address the issue of
the costs of disability in areas where it has jurisdiction. This
includes the tax system. The federal government, therefore, should
follow specific principles for the tax treatment of disability that
will help to avoid the anomalies that presently reflected in the
federal tax system.
We recommend…
42. The Government of
Canada should base all future revisions to income tax legislation
as it affects persons with disabilities to reflect principles that
deal with the additional costs of disability. These principles are:
- For persons with disabilities normal activities bring extraordinary
costs which are involuntary.
- Some of these costs are general and intangible and others can
be supported by receipts for expenditures.
- Tax recognition of these costs is not a subsidy based on sympathy
or charity but fair tax treatment.
- Tax recognition of disability-related costs should encourage,
not discourage, the employment of persons with disabilities.
- The costs associated with disability are more onerous when borne
by individuals with limited income.
- The costs associated with disability are not limited to those
with taxable income.
You Can’t Do It Alone
We are aware that any
comprehensive reform to deal with disability-related costs requires
the collaboration of provincial governments. Collaboration can ensure
that a move towards fairness by one level of government would not
be cancelled out by a move to save money by another. We want to
create a situation where an increase in federal expenditures leads
to a net gain for people with disabilities. We want to minimize
the risk, for example, that if the federal government moves to make
refundable any tax credit dealing with the costs of disability,
the provinces reduce the amount they spend on disability-related
supports. We want to avoid the possibility that they might also
reduce provincial income support for those who receive social assistance
– most of whom would, for the first time, benefit from the
tax credit if it were refundable.
Canadian government should
attempt to devise a pan-Canadian program that would address the
concerns of mobility and equality of outcomes across the country.
The aim of such a program would be to ensure that individuals in
similar circumstances are treated fairly and equitably.
We recommend….
43. Taking into account
the principles in recommendation 42 the Government of Canada should
work with the provinces to deal with the direct costs of disability
in order to identify key elements that could be funded through a
pan-Canadian program. The federal government should engage two or
three provinces to:
a) devise new approaches
to ensuring that disability-related supports are in place consistent
with economic participation and citizenship; and
b) identify the transitional financing issues that need to be addressed
through federal-provincial collaboration.
QUESTIONS ARISING FROM CCRA’S CURRENT REVIEW
Since the Federal Task
Force report there have been a number of initiatives particularly
in 1996 and 1997 to reduce the number of eligible claimants. In
fact Canadian Customs and Revenue Agency readily admits that 10,000
individuals were cut from eligibility at that time. Presently there
is a review being undertaken by CCRA targeting between 75,000 to
90,000 individuals who have claimed the DTC for some time. CCRA
says they require more information to ensure that individuals are
still eligible. The letter individuals have received states “
After reviewing your file, we have determined that we do not have
enough information to continue to allow your claim for the 2001
and future tax years.” Why if the Agency simply requires more
information are they not simply asking for more information rather
than saying you are no longer eligible. Past reviews have cut the
number of eligible individuals, CCD can only be skeptical of the
intent of this review. That skepticism grows when we know that there
has been no change in the legislation that provides the definition
for eligibility. If there is no change in definition, is process
being used to simply reduce the number of eligible individuals?
Additionally in the broader
discussion of disability initiatives, disability supports have been
identified as the priority. The first step in what we all hope will
be a more substantial initiative, has been discussion of a refundable
DTC. Is there an attempt to reduce eligibility in order to make
a refundable DTC less costly?
During a phone call discussion
with a representative of CCRA it was suggested that medical advances
may be such that some individuals are no longer limited in their
activities of daily living. While this may be true for a small portion
of the community those who use wheelchairs are not now walking nor
are those who are blind regaining their sight. A member of CCD facetiously
suggested that his doctor write to CCRA and lament the lack of a
“miracle” and indicate that while they continue to hope
for miracles until such time as one occurs the individual would
continue to claim the DTC. Are there reasonable medical advances
to suggest that a significant number of those who were eligible
for the DTC would now no longer be eligible?
CCRA suggestion that
files are incomplete may have little to do with what documents have
been filed by individuals seeking the credit. This program has been
administered by various departments of government over the years.
Are files incomplete because records have been lost in the transfer
from department to department? Certainly persons with disabilities
understand the need for ongoing audits of programs to determine
if they are meeting their objective. CCD would suggest that this
audit process not simply look to making individuals ineligible but
also determine if the present system is capturing appropriately
those individuals with disabilities who have additional costs related
to their disability. Is the review’s goal to save dollars
or to fulfill the original intent of the program? If it is the former,
then the goal of the DTC has changed.
Long Term Issues
The DTC is a critically
important program for individuals with disabilities and it does
provide significant benefit to many individuals, however there are
limitations as well that should be addressed in any review of the
program.
THE PERENNIAL QUESTION OF DEFINING DISABILITY
There is no silver bullet
in defining disability. Definitions have evolved over the years
as we have come to understand disability not in terms of individual
impairment with the problem fixed within the individual but rather
as a social construct that should focus more on environmental barriers
to participation than on physical or mental functioning. The current
definition of disability for the DTC states:
- “You may be able to claim the disability amount if a qualified
person certifies either of the following;
- You are blind all or almost all the time, even with the use of
corrective lenses or medication, and the impairment is prolonged.
- You have a severe mental or physical impairment which causes you
to be markedly restricted in any of the basic activities of daily
living, and the impairment is prolonged.”
Additionally there is
a new category of “life sustaining therapy” that allows
those requiring therapies such as dialysis.
The Income Tax Act states
the definition then CCRA has the task of administering eligibility.
CCD suggests there is need for a review of the definition as well
as a better methodology of determining eligibility. There are a
number of problems to overcome. They include:
- Using the medical system to certify eligibility
- Limitation of the definition of “basic activities of daily
living”
- Using appropriate questions to get information
USING THE MEDICAL SYSTEM TO CERTIFY ELIGIBILITY
Canadians with disabilities
face this problem repeatedly. In fact many individuals with disabilities
visit their medical doctor more for certification of the DTC, CPP
Disability Pension, Disabled Parking Certificates, etc. than they
ever do for any medical reason. Within the medical community itself
there may not be any controversy regarding the diagnosis of a physical
or mental impairment however, defining the disabling impact of the
impairment is a much more complex issue and one in which CCD would
argue medical practitioners are not well skilled. Additionally the
question must be asked; Why are we using an already overtax system
for purposes beyond provision of health services or health care?
Do medical doctors have an understanding of conditions and how they
impact on the activities individuals are involved in at home, at
work, at school or in the community?
It should also be understood
that the medical system charges in many instances for providing
certification. The cost may range from $15 to $20 for signing any
given form. If the current review of 90,000 individuals requires
them to see their doctor and if a fee of $20 is charged for each
visit the cost to individuals is $1,800,000. There have been improvements
and expansion of qualified persons to certify eligibility but the
basic question of the most appropriate gatekeepers has not been
satisfactorily answered.
LIMITATION OF THE DEFINITION OF “BASIC ACTIVITIES
OF DAILY LIVING”
The DTC defines basic
activities of daily living as:
- walking
- speaking
- perceiving, thinking and remembering
- hearing
- feeding and dressing
- eliminating bodily waste
“Basic activities
of daily living do not include general activities such as working,
housekeeping, or social recreational activities”. The current
definition is very limited. Certainly some individuals will experience
few limitations in these areas but may have significant additional
costs related to their disability. Take for example an individual
who as a result of polio does not have the use of their arms. They
may well be able to do all of the above and have adapted in ways
that make them quite independent but there will still be additional
costs. The cost may be in the type of clothing the individuals is
forced to buy in order to dress themselves easily, or the type of
vehicle they must purchase so they can drive, or the need to park
close to work rather than in more distant cheaper lots and walk.
All of these result in additional costs and would not be offset
in workplace accommodation, vehicle retrofit programs or employee
benefits. The extreme limitation of the “activities of daily
living” definition will not meet the objective of the DTC,
that being offsetting the additional costs individuals with disability
experience because of their disability. Additional costs should
include costs of working, housekeeping and social and recreational
activities that are not offset in other ways.
USING APPROPRIATE QUESTIONS TO GET INFORMATION
CCD has provided input
in the past to CCRA on the development of a questionnaire for use
in determining eligibility for the DTC. This process should be ongoing
to ensure continued improvements in the questions asked to get the
necessary information for certification. There was an advisory body
to CCRA in the mid 1990’s however it has not be in use for
about five years, yet better mechanisms are still required.
Of particular concern
to CCD is the question; “Can your patient perceive, think,
and remember? The intent of this question is to capture information
on those who have psychiatric, developmental, or learning disabilities.
While CCD supports the move to a functional definition process this
question we believe will not meet the desired objective. Many individuals
with episodic mental health problems may at times not be able to
perceive, think or remember but that is unlikely to be the case
all of the time. Thus medical professions may answer No to the question
and thus disqualify the individual. Many individuals with developmental
disabilities have no problem thinking, or perceiving or remembering
because they have developed mechanisms for coping which include
family and friends support groups, job coaches, advisors, etc. These
individuals may not be found to be eligible because of the question
but they may very well have additional costs.
Within the “activities
of daily living” certification process is the concept of inordinate
amount of time to perform certain activities. Again the question
really becomes what is inordinate. Yes an individual may be able
to walk 50 meters on level ground and he or she may even be able
to do so in a reasonable time frame but walking that distance may
in essence severely reduce the individuals energies and abilities
to do much else that day. The hard and fast definitions may not
work and there must be some flexibility in the form to allow those
individuals to benefit from the DTC.
There is a section of
the form that allows medical practitioners to “state the medical
diagnosis related to the impairment and describe the restriction
and devices used.” This section is at the end of the form.
The form now is essentially a yes or no questionnaire with what
appears to be little flexibility. The flexible question at the end
regarding diagnosis may not actually be completed because the medical
practitioner has already determined the individual ineligible through
the yes and no process. There is need for a more flexible component
that allows the individual or the appropriate “gatekeeper”
to identify additional costs that an individual may incur as a result
of his or her disability. The functional definition orientation
is an improvement over the categorical medical diagnosis of old
but the addition of the following questions may provide more flexibility
and better meet the objective of the program:
- Do you experience additional
ongoing costs because of your disability that are not offset through
another program?
- What is the nature
of those additional costs?
The functional definition
does recognize the evolution of thinking regarding defining disability
however it may not as yet be the perfect tool for determining if
individuals have additional costs because of their disability.
CCD seeks greater dialogue
between the community and the Departments of Finance and Canada
Customs and Revenue Agency to find ways of creating greater fairness
in our tax system for Canadians with disabilities.
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