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A Call for Action
BUILDING CONSENSUS
FOR A NATIONAL ACTION PLAN ON MENTAL ILLNESS
AND MENTAL HEALTH
A DISCUSSION
PAPER
PREPARED BY
THE CANADIAN ALLIANCE ON
MENTAL ILLNESS AND MENTAL HEALTH
(CAMIMH)
June 2000
PREFACE
Mental illness and mental
health have been neglected in Canada for far too long. Consider
the alarming statistics:
• At least one in five people will be affected by mental illness
during their lifetime.
• Four thousand people commit suicide each year.
• Depression will be the single most expensive cause of loss
of workplace productivity due to disability by 2020.
Preserving and promoting
mental health can contribute to healthy
families, productive workplaces and nurturing communities.
Now consider these startling
facts about Canada:
• The need for
care, treatment, rehabilitation, community integration and support
programs and services far exceeds what is available in most communities.
• Mental health promotion and prevention issues have been
placed near the bottom of the priority list of health care initiatives
undertaken by all levels of government.
• The stigma associated with mental illness and lack of
public awareness about mental health issues prohibits open discussion,
a co-coordinated approach to finding solutions and often, help
for the people who need it the most.
• Canada does not have a national information collection
and reporting system to allow for the accurate estimation of the
incidence and prevalence of mental illnesses or to evaluate mental
illness and mental health programs, services and policies.
• There is no organized mental illness and mental health
research agenda in Canada.
• The level of consumer involvement in mental illness care
and prevention and mental health promotion falls well below best
practices.
• Canada, unlike most other developed countries, does not
have a national action plan for mental illness and mental health.
The Canadian Alliance
on Mental Illness and Mental Health (CAMIMH) calls for significantly
increased attention to mental illness and mental health promotion
at all levels of Canadian society. This paper is CAMIMH’s
tool to engage a broad range of stakeholders in generating ideas
and building consensus on a national vision and action plan for
mental illness and mental health. It is hoped that this discussion
paper will inspire many new partners and allies to WORK TOGETHER
to achieve this vision through one strong voice.
We propose four main
issue areas for change to improve the current situation:
• Public Education and Awareness
• A National Policy Framework
• Research and
• Information/Data System.
Some initial goals and
options for action are suggested within each issue area. Please
engage your constituencies in dialogue regarding these issues and
provide CAMIMH with your feedback.
The time to take action
to redress the serious lack of attention to mental illness and mental
health issues is now!!! CAMIMH looks forward to hearing from you.
I. WHY?
INTRODUCTION
The Canadian Alliance
on Mental Illness and Mental Health (CAMIMH) is pleased to present
this Call for Action. CAMIMH is made up of five national organizations
concerned with mental illness and mental health:
Canadian Mental Health Association
Canadian Psychiatric Association
Mood Disorders Association of Canada
National Network for Mental Health
Schizophrenia Society of Canada
Representatives have
been meeting regularly to build a common vision for the future,
in which:
• those with a mental illness and their families receive the
care, supports and attention they deserve from our society and our
health care system
• mental health promotion is undertaken as a co-ordinated
and regular
educational and awareness building activity
• mental illness and mental health hold a higher priority
on the health and social policy agendas.
Before we proceed, we
want to be clear about a few things this document is NOT:
• It is not a discussion of substantive issues relevant to
mental illness and mental health, such as suicide, homelessness,
care and treatment modalities, specific mental illnesses and specific
mental health promotional considerations.
• It is not a health policy discussion, but rather an attempt
to shine the spotlight on mental illness and mental health and their
vast but underrated importance.
• It is not a guide to service system reform, but a call for
a much more fundamental shift in how Canada deals with mental illness
and mental health issues.
CAMIMH’s approach
represents a major shift in at least three ways.
1. A Common Perspective
Our Call for Action comes after nearly two years of consensus building.
Despite some basic differences in perspectives among the consumers,
families, core professional service providers and community organizations
represented in our organizations, we have built a clear collective
vision based on the goals on which we agree.
2. A Focus on the Place
of Mental Illness and Mental Health
This paper begins to position mental illness and mental health prominently
within the health and social policy fields.
3. A Broad Vision of
Mental Health Reform
Our vision for change involves a holistic notion of reform consistent
with the Canada Health Act, which calls for “reasonable access
to health services,” as well as protection, promotion and
restoration of physical and mental well-being.
Our task is enormous,
but we have had some essential help in taking this first step. CAMIMH
would like to acknowledge the financial assistance of the Federal/Provincial/Territorial
Advisory Network on Mental Health in helping CAMIMH lay the groundwork
for this paper. However, the views expressed in this paper are entirely
those of CAMIMH and in no manner are intended to reflect, presuppose,
or compromise the positions or views of those who provided financial
support to CAMIMH. A special thank you also to the key informants
chosen from our five organizations who participated in a focus group
to provide feedback on an earlier draft of this paper in late December,
1999. Finally a thank you to Pam Thompson for facilitating some
of the critical early meetings, and to Dorethea Helms for her invaluable
editorial assistance.
We hope this document
will inspire other individuals and groups who care about mental
illness and mental health to begin asking questions, talking about
the issues and promoting policy and attitudinal change.
STIGMA: AN OVERRIDING
CONCERN
Stigma by definition
is a ‘mark of shame or discredit.’ People with mental
health problems are often stigmatized and discriminated against
due to lack of knowledge, misinformation and fear on the part of
the public.
“This study [first US national survey of county-based health
programs for the mentally ill] indicates that public prejudice is
the number one problem that the mentally ill face in this country
today. It, like the Surgeon General’s December 1999 report
on Mental Health, shines light on a corner of health that has been
kept in the dark for far too long.”
U. S. Deputy Surgeon General Dr. Kenneth P. Moritsugu (National
Association of County Behavioral Health Directors, 2000)
"Our findings show
that the stigma surrounding mental illness is just as disabling
as the disease itself, and that needs to be abolished, since we
now have the new medical treatments.”
Robert C. Egnew, Spokesperson for the NACBHD (National Association
of County Behavioral Health Directors, 2000)
CAMIMH believes that persons with depression, schizophrenia, severe
anxiety, or any other mental illness should be free to deal with
their issues as openly as persons suffering from heart diseases
or diabetes. Research demonstrates that stigma all too often results
in people delaying seeking treatment and families denying that a
family member may have a mental illness.
Stigma continues to “infect”
every issue surrounding mental illness.
Due to stigma and the
inadequacy of services available to meet the needs of individuals
and families affected by mental illness, there has been a feeling
of powerlessness among the “grassroots” to change the
situation.
The framework for a National
Action Plan that follows deals with the need to address and eliminate
stigma.
MENTAL ILLNESS
Mental illness is the single largest category of disease affecting
Canadians. Up to 20 percent of the population will experience mental
illness at some time during their lives. Mental illness carries
a burden of substantial mortality and significant morbidity. The
World Health Organization reports that six of the leading causes
of years of life with disability are mental disorders (Murray &
Lopez, 1996). Despite dramatic improvements in physical health in
most countries, “… the mental component of health has
not improved over the past 100 years.” (WHO, 1999).
We know that:
- 1 in 5 Canadians will
experience living with a mental illness serious enough to impair
functioning
- 3% of those or 1 million
Canadians suffer from a severe and persistent mental illness
- 1% of Canadians suffer
from schizophrenia
- 4,000 people a year
die prematurely by suicide
Disability due to depression
seriously affects 10 out of 100 people at some point in their lives
along with their families and places of work, and is the leading
cause of disease burden among women 15 - 44 years of age in the
developed world
Only 1 out of 5 children
who need mental health services receives them
Barriers to early intervention
create situations that present high risk to the health of the vulnerable
individual. Early symptoms may go unrecognized and long waiting
lists often delay access to services.
Since the reforms of
the mental health system of the 1960’s and 1970’s, tens
of thousands of institutional beds have been closed, and many individuals
with a mental illness have moved from chronic care facilities back
into the community with little or no support and without appropriate
transfer of institutional resources to community care systems. More
recent closures of short-stay hospital beds did not for the most
part correspond with an increase in resources for alternative community-based
care.
The result? An increasing
number of homeless people with mental illness, families and friends
“stretched and distressed to the limit,” large numbers
of people with mental illness languishing in jail and many others
living in substandard housing or receiving their care in poorly-funded
group home settings.
With so many individuals
not receiving adequate services or supports, the time has come for
all stakeholders including all levels of governments to come together
to make a commitment to reform.
THE PROMOTION OF MENTAL HEALTH
For individuals to realize
their full potential and contribute in meaningful ways to our society
mental health is essential; yet, the lack of attention to mental
health promotion across Canada is notable.
It has been well demonstrated
that a mix of psychological and social determinants affects health
overall and mental health in particular. Health Canada has listed
these determinants as:
• income and social status
• social support networks
• education
• employment and working conditions
• social environments
• physical environment
• personal health practices and coping skills
• healthy child development
• health services
When these determinants
of health are strong and in place, mental health is positively impacted.
But when they are weak or missing, mental health problems can result.
Thus, they suggest directions where interventions are possible.
At the level of the individual,
a sense of control, social support and meaningful participation
are important in helping to reduce stress, anxiety, “burnout”
and frustration that are common today. At a system level, strategies
that create supportive environments, strengthen community action,
develop personal skills and reorient health services can help to
ensure that the population has some control over the psychological
and social determinants of mental health. (Willinsky & Pape,
1997).
It is essential for supports
to be in place so that all Canadians, whether young or old, whether
living with a mental illness or not, can maximize their mental health.
A greater emphasis on
mental health promotion and prevention can reduce the demand on
already overburdened systems. System reform is critical for the
development of a strong, resilient and healthy population.
COLLABORATIVE
NATIONAL LEADERSHIP IS REQUIRED
“The burden of mental health related problems in the population
has been underestimated. Not only are they linked to certain physical
illnesses and increased mortality from suicide, they also bear a
complex and poorly understood relationship to many of the most toxic
public health problems of our day, such as interpersonal violence,
criminality, addictions, homelessness and poverty (Thompson &
Bland, 1995). They are associated with significant emotional suffering
and disability, and have important but largely unrecognized human
and economic costs (Neugebauer, 1999).” (quoted in: Stuart,
H. et.al. 1999)
Other than addressing
child wellness strategies, both the recent national debates around
national health care reform (National Forum on Health, 1997) and
around the social security reform (Improving Social Security in
Canada, 1994) of the earlier 1990s were silent about mental illness
and mental health issues. While the responsibility for planning
and delivering mental health services rests with the provinces and
territories, leadership provided by federal/provincial/territorial
collaboration could go along way to begin to address these problems,
while positioning Canada as a nation that regards the mental health
of its citizens as a priority. Current legislation may indicate
a responsibility on the part of the federal government to act on
a national strategy.
The Canada Health Act
states that:
…the primary objective of Canadian health care policy is to
protect, promote and restore the physical and mental well being
of residents of Canada and to facilitate reasonable access to health
services without financial or other barriers.
The Canadian Charter
of Rights and Freedoms states:
Every individual is equal before and under the law and has the right
to the equal protection and equal benefit of the law without discrimination
based on race, national or ethnic origin, colour, religion, sex,
age or mental or physical disability. Section A15. (1) and,
...does not preclude any law, program or activity that has as its
object the amelioration of conditions of disadvantaged individuals
or groups including those that are disadvantaged because of race,
national or ethnic origin, colour, religion, sex age or mental or
physical disability. (2) Subsection (1)
While mental health care
accounts for as much as 16% of health care costs and directly affects
20% of the population:
• Health Canada’s program spending on mental illness
and mental health promotion combined is less than $500,000 per year.
• No distinct mental health division exists at Health Canada
to develop and steer national policy and discussions in this area
at a senior management level.
• Only about 4% of all public research dollars go to mental
illness and mental health research.
• Canada does not collect, in a systematic manner, national
data on the mental health status of Canadians.
Many stakeholders are
finding the “invisibility” intolerable and are uniting
to bring about a national presence in mental illness and mental
health.
II. WHY NOW?
LONG TIME…
INSUFFICIENT ATTENTION
It has been nearly 40
years since recommendations for reforming mental health care were
presented to the Hall Commission.
‘‘Of all
the problems presented before the Commission, that which reflects
the greatest public concern, apart from the financing of health
services generally, is mental illness...” (Royal Commission
on Health Services, 1964). This concern resulted in three decades
of deinstitutionalization and the closure of tens of thousands of
inpatient beds, but without the corresponding funding and development
of adequate and appropriate community-based services and supports.
• The City of Toronto
report on homelessness, chaired by Anne Golden, describes homelessness
as a significant result of the deinstitutionalization policies.
The homeless have many faces: people who have mental illnesses,
people who suffer from alcohol and substance abuse, and the plight
of Aboriginal peoples who are over-represented in the homeless population
compared to the general population. (Stuart, et. al, 1999)
• It has been ten
years since the federal government released: “Mental Health
for Canadians: Striking a Balance.” Its policy document linked
the national health promotion vision of “Achieving Health
for All” to mental health. Other major reports together with
numerous provincial and regional policy and discussion documents
have recommended significant changes to improve services and programs
for: individuals with serious mental illnesses; children’s
mental health services; suicide prevention; aboriginal peoples;
and offender and prison populations. Few of the recommendations
and ideas have been implemented.
• More recently
in 1997, the Federal/Provincial/Territorial Advisory Network on
Mental Health (ANMH) commissioned a two-phase study that focused
on a critical evidence-based review of the current state of knowledge
related to best practices in mental health reform focusing on chronic
and severe mental illness, along with a situational analysis of
mental health reform policies, practices and initiatives in Canada
that approximated best practices. The reports’ recommendations
are aimed at building an integrated system of care for the severely
ill. While some provinces are working to adopt best practices approaches,
the funding and commitment to support accountability, research and
evaluation elements remain elusive.
RENEWED INVESTMENT IN HEALTH : THE HEALTH CARE FUNDING DEBATE
In the year 2000, health
care has become a priority for all levels of governments and the
public. At the same time, the burden and cost of mental illness
and mental health in Canada is starting to be acknowledged. But
reinvestment into health by all levels of governments MUST include
significant investments in mental illness needs and mental health
promotion supportive of the front line needs and delivery of services
for which provinces are responsible.
As part of this reinvestment,
mental health human resources must be addressed; the current shortage
of specialized professionals and non-professionals will only get
worse without strategic planning. Many professional workers are
continuing to leave Canada to pursue careers elsewhere. How professionals
must work is changing. For example, psychiatrists have been traditionally
trained for hospital and private practice, rather than working in
community-based agencies or non-hospital centered clinics and shared
care models. Some non-professional mental health workers lack appropriate
training for new roles. The training of mental health workers focuses
little attention on mental health promotion.
A concerted effort must
take place to ensure that a balanced mix of services and support
are equally comparably available at similar levels of quality in
all regions of the country. An infusion of capital funding will
ensure that people living with mental illness and mental health
can live with respect and dignity in an environment that will reflect
a high standard of quality of life. Reform strategies in attracting
and maintaining excellent mental health human resources are essential.
A FRAGMENTED
VOICE, A FRAGMENTED SYSTEM
Prior to the creation
of CAMIMH, there was no co-coordinated and concerted citizen’s
action around mental illness and mental health issues at the national
level. Advocacy in this area was generally illness or population-specific
(e.g., related to schizophrenia, mood disorders or children’s
mental health). There was no clear, common, strong voice to advocate
for overall mental illness and health needs. CAMIMH is attempting
to fill this void.
There are a variety of
factors that led to fragmentation of the non-governmental sector
of the mental illness and mental health community, including uneven
funding. In part, the NGO sector mirrors the service and policy
sector itself. While mental illness care, treatment and support
services and mental health promotion initiatives, more than any
other health care area, cross over numerous policy and program areas,
these too often operate as silos. Moreover, the linkages between
health and social policy required for effective mental illness and
mental health policy development never developed at the national
level.
A healthy public policy
approach to mental health policy development would go a long way
to mitigate the negative impact of a fragmented sector on mental
illness care and the mental health of Canadians.
CANADA LAGS BEHIND IN WORLD PROGRESS
The United Kingdom
The United Kingdom (UK)
followed its “The Health of the Nation” White Paper
in 1992 with action plans in five key health areas, one of which
was mental health. The “Mental Health Key Area Handbook”
(1994), as the action plan is called, provides practical advice
to health system managers on implementing the changes necessary
to achieve the targets for the mental illness key area. The primary
mental health targets set out in the UK White paper were:
• to improve significantly
the health and social functioning of mentally ill people
• to reduce the overall suicide rate by at least 15% by the
year 2000; and
• to reduce the suicide rate of severely mentally ill people
by at least 33% by the year 2000.
The UK action plan provides
action summaries and implementation guidelines based on the best
available evidence in the following areas:
• Promotion of
mental health and reduction of stigma attached to mental illness
• Systematic needs assessments and reviews of service provision
at local levels
• Wide local consultation on developing strategies at the
local level
• Effective joint planning and servicing between the health
social service systems
• A systematic and planned approach to the transition from
institutional to community care using care management approaches
• Development of human skills and resources (staff development,
multidisciplinary teams, closer collaboration between primary and
secondary care sectors) to increase awareness, detection and treatment.
• Implementation of effective mental health information systems
Source: UK Department
of Health. Health of the Nation: Key Area Handbook: Mental Illness,
2nd edition. 1994.
Australia
In 1992, Australia made
a decision to adopt a “National Mental Health Policy and Plan.”
This followed an earlier endorsement of a Statement of Rights and
Responsibilities, and these two documents together formed a National
Mental Health Strategy. This strategy commits all state, territorial
and Commonwealth governments within Australia to improve the lives
of persons with mental illness.
The aims of the Australian
National Mental Health Strategy are to:
• Promote the mental health of the Australian community
• Prevent the development of mental health problems and mental
disorders where possible
• Reduce the impact of mental disorders on individuals, families
and the community
• Assure the rights of people with mental disorders
The strategy provides
a national framework for mental health reform. It addresses such
key issues as: the provision of integrated mental health services;
intersectoral links; consumer rights; legislation; workforce reform;
monitoring and accountability procedures; and the requirements of
special needs groups such as people of Aboriginal descent.
New Zealand
New Zealand developed
an action plan focused on mental health promotion in 1997, after
setting the following core objectives for mental health in that
country.
• To promote the
mental health of its populations (including specific reference to
Aboriginal peoples)
• To reduce the death rates and disability from depression.
New Zealand decided not
to set outcome targets until it had established adequate baseline
data. Its plan is to develop a series of issue papers that provide
program planners with guidelines and overviews of what is known
and what works.
New Zealand’s plan
addresses four main issue areas:
• healthy public policy issues
• public health program issues
• personal health services issues
• research and information issues
United States
The United States process
is the most recent and flows out of its federal government’s
desire to set a national health agenda for the new millennium. In
“Mental Health: A Report of the Surgeon General” (1999),
a commitment is made to advance the state of mental health within
the country. Key aspects of this initiative are a national anti-stigma
campaign, a call to action on suicide prevention and a commitment
to improving the accessibility, availability and quality of mental
health services. This is envisaged as a decade-long action agenda
and is being developed with input from a broad consultation process
that includes a state component.
Canada has the legislative and policy tools needed to undertake
a national plan and catch up with what these nations have done recently.
Canada must join other
countries in their acknowledgment that mental illness and mental
health are priorities for the health of any nation!
THE SOCIAL UNION FRAMEWORK:
PARTNERSHIP OPPORTUNITIES BETWEEN
THE FEDERAL GOVERNMENT AND THE PROVINCES
Canada’s adoption
of the Social Union Framework in February 1999 has created a vehicle
by which the provinces and the federal government can work together
on issues of national importance. It has potentially broken the
longstanding impasse or inability to develop ‘collaborative
national’ (federal, provincial and territorial) strategies
on social and health issues. The framework’s commitment to
begin this work by addressing child and disability issues, together
with Canadians’ and governments’ recognition and support
for reinvestment in health, provide an excellent opportunity for
using the Social Union Framework to advance a national mental illness
and mental health agenda.
The Children’s
Agenda that was initiated by a few provinces has now become a priority
endorsed by all provinces and the federal government using the Social
Union Framework approach, enabling the development of a national
position and implementation process.
National leadership in
partnership with the provinces can be implemented in a number of
other ways. For example, following the calls for action by municipalities
and community agencies for national leadership on the homeless crisis,
the federal government launched the “Supporting Communities
Partnership Initiative.” It includes a substantial federal
investment to engage all levels of government and partners to develop
the tools needed to tackle the problem of homelessness and to put
in place the seamless web of services and supports that people need
to make a successful transition from the street to a more stable
and secure life. Minister Bradshaw stated, “Community groups
want the Government of Canada to be a partner in a national effort
to eliminate homelessness. This effort, in order to be successful,
must be a partnership between all orders of government and the private
and voluntary sectors.” (Minister of Labour, December 1999).
Prior to the Social Union Framework Agreement, the federal government
developed national strategies in collaboration with the provinces,
territories and community stakeholders on a range of important national
health issues, such as AIDS, women’s health and tobacco. The
Federal/Provincial/Territorial Advisory Network, consisting of senior
mental health managers in each province and territory and which
is once again linked to the Federal/Provincial/Territorial Health
Ministers’ Committee structure, can also be instrumental in
facilitating the cross jurisdictional collaboration needed for the
development of a ‘national action plan on mental illness and
mental health’ in Canada.
With national leadership
and provincial partnerships as well as successful completion of
the consultation process associated with this discussion paper,
CAMIMH believes it is possible to devise and implement a coordinated
national action plan for mental illness and mental health in Canada.
While respecting the
jurisdictional issues involved in the provision of mental health
services and for the implementation of mental health promotion strategies,
a national strategy is long overdue and possible.
III. A FRAMEWORK FOR ACTION
INTRODUCTION
This discussion paper is the first step toward the development of
consensus for a national action plan on mental illness and mental
health. The process for coming to a consensus among the representatives
of CAMIMH on what should be put forward in this paper started with
a consensus on core values, and a vision for the future as a foundation
to strategies for action. These are appended at the end of the document.
Each component of this framework section includes a brief discussion
of the current situation and what is needed, followed by some suggested
goals and options for action. These goals and options for action
are intended to facilitate discussion, stimulate new ideas and build
consensus during a national consultation process. We invite your
own ideas and comments.
The four components or 'anchors' of the framework for national action
are:
• Public Education and Awareness
• National Policy Framework
• Research
• National Information - Data System
A. PUBLIC EDUCATION
AND AWARENESS
Goal A1:
Reduce the stigma associated with mental illnesses in Canadian society.
Options for Action
Develop an effective national public awareness strategy that would
include initiatives to:
• Develop national education materials and dissemination strategies
about the nature of mental illnesses and the impacts on individuals,
their families and Canadian society.
• Encourage and support ministries of education to integrate
mental illness and mental health issues into school curricula.
• Involve consumers of mental health programs and services
in the development and implementation of national strategies.
• Work with members of the justice system to increase their
awareness of the nature of mental illnesses and to develop and provide
alternatives to the incarceration of individuals with mental illnesses.
• Work with members of the media to provide responsible public
information and raise awareness regarding mental illness including
its prevention.
• Create a national clearinghouse for information on mental
illness and mental health.
Goal A2:
Increase public knowledge and awareness about effective practices
in the fields of mental illness and mental health.
Options for Action
• Develop a national campaign to raise people’s awareness
regarding mental illness and health programs and services and when
and how to access appropriate care and support.
• Develop and promote an interdisciplinary Speaker’s
Bureau.
• Co-ordinate a national public education and awareness campaign
that provides regular ‘snapshots’ of the state of mental
health and mental illness policies, programs and outcomes for Canadians.
• Develop a national campaign to educate the public on the
value of mental health and well-being.
B. National Policy Framework
An essential component of the discussions leading toward a National
Action Plan, a comprehensive cross jurisdictional policy framework,
need not intrude on provincial powers; rather it can and should
evolve out of a consensus among all stakeholders including governments.
Goal B1:
Legislative/Policy Initiatives—Ensure that the impact on mental
illness and mental health is considered in the development and implementation
of every federal policy and legislative initiative.
Option for Action
• Guided by the provisions of the Canada Health Act, empower
a federal/provincial/territorial working group (working in collaboration
with a stakeholder advisory group) to develop and adopt criteria
that can be used to assess the mental illness and mental health
impact of new and current policy and legislative initiatives.
Goal B2:
National Guidelines, Benchmarks & Accountability—Establish
and adopt national guidelines or benchmarks for key outcome areas
of a desired mental health system and for mental health promotion.
Guidelines or benchmarks can be developed in a manner that respects
provincial jurisdiction over health services while helping to assure
Canadians, no matter where they live or what their economic circumstances,
similar access to professional and community supports and programs
based on local need and culture.
Options for Action
• Develop guidelines for stakeholder involvement (e.g., consumers,
families, providers) to ensure their input into policies and programs
that have a mental illness care or mental health component.
• Develop guidelines that ensure an appropriate balance of
services/supports is available according to community need.
• Develop guidelines for effective (best) practices/outcomes
for mental illness care systems, as well as mental health prevention
and promotion programs.
• Develop outcome guidelines or targets for research, evaluation
and innovation.
• Develop national mental health benchmarks or guidelines
that ensure access to mental illness services and mental health
promotion programs are consistent with the provisions of the Canada
Health Act.
• Develop a national report card that would include a regular
review of provincial mental health services & Acts and their
use.
• Encourage the utilization of accreditation systems that
measure adherence to best practice standards, guidelines & benchmarks.
• Develop guidelines for mental health promotion strategies
for all Canadians.
• Evaluate the extent to which public health programs deliver
mental health promotion programs.
Goal B3:
Integration and Collaboration—Develop collaborative and cooperative
partnerships that will enhance systems of care and mental health
promotion opportunities.
Options for Action
• Build on the call for policy co-ordination contained in
The Mental Health of Canadians: Striking a Balance (1988).
• Harmonize policies that affect mental illness care services
and mental health promotion strategies across all levels of government.
• Promote the formation of interdisciplinary partnerships
among health professionals working together with mental illness
and mental health communities by:
• i. Developing incentives that support partnerships among
mental health professionals, caregivers, consumers, families and
community support services in the planning and delivery of mental
illness and mental health programs and services.
• ii. Developing cost-sharing arrangements for specific services
among community agencies.
• iii. Promoting community participation in the planning and
delivery of mental illness and mental health programs and services.
Goal B4:
Consumer and Family Participation - Strengthen consumer and family
participation in national policy development affecting mental illness
services and supports as well as mental health promotion.
Options for Action
• Strike a federal advisory group or expert panel of consumers
and family members to provide ongoing input into the mental illness
and mental health components of federal policies.
• Develop guidelines that encourage meaningful participation
of stakeholders in mental health policy development.
• Identify the increased resources needed to support meaningful
and effective consumer and family involvement in mental health policy
development.
• Set up round tables including federal/provincial/territorial/aboriginal/
consumer/family representation to develop the targets or benchmarks
Goal B5:
Promotion of Self-Help—The federal government recognizes consumer
and family self-help as a significant and vital mental health resource.
Options for Action
• Develop federal guidelines to ensure that consumers and
families are supported to develop their own groups and organizations.
• Build on the recommendations regarding consumer and family
self-help in the Best Practices reports (1997).
• Develop guidelines for effective practice mechanisms that
help increase the knowledge and skills of consumers and families.
Goal B6:
Innovative Models of Service Delivery—Encourage and facilitate
the piloting and testing of, and dissemination of information about
new and innovative models of delivering mental illness/health services
based on effective practices.
Options for Action
• Support the development, implementation and evaluation of
innovations in the provision of services for people with mental
illness and for mental health promotion.
• Investigate the need for, and support the development, implementation
and evaluation of, new approaches to support interdisciplinary collaborative
practice and make recommendations on the nature of the required
changes. (E.g., “Shared Care,” Kates et al., October
1997). Issues that should be explored include: alternate methods
for remunerating psychiatrists; changes to provincial fee schedules
to cover services rendered by family physicians, psychiatrists,
nurse clinicians etc. that do not involve direct patient care; and
providing incentives to encourage family physicians to spend time
with patients who have complex psychiatric disorders and other emotional
problems.
Goal B7:
Human Resources Develop a national mental illness and mental health
human resource plan to the year 2005.
Options for Action
• Establish a multi-stakeholder task force that reports to
the Federal Provincial Territorial Advisory Committee on Health
Services to develop a mental illness and mental health human resource
plan for Canada, so that high quality appropriately trained mental
illness and mental health service providers are available to meet
the health needs of Canadians. For example:
• i. identify the numbers of current mental health workers
(professional and non-professional) in Canada
• ii. identify the mental health human resource needs for
the next 25 years
• iii. develop recommendations for a detailed national human
resource plan for mental health workers (professional and non-professional)
• iv. develop standards/guidelines for front-line mental health
workers related to basic education/experience, number and service
mixes
• v. involve mental health consumers in the education and
training of mental health care workers.
• Create a national task force to review and make recommendations
on improving the training and knowledge of mental health intervention
strategies including multidisciplinary approaches to mental illness,
and effective mental health promotion strategies. The task force
should subsequently monitor or steer the implementation of these
recommendations. The areas for review would include such strategies
as:
• i. the extent to which mental health issues and mental health
promotion are part of the curricula of training of all health professionals
• ii. the extent to which Continuing Education programs (CE)
provide mental health promotion topics in an integrated manner
• iii. the exposure of students to effective practice role
models
• iv. the extent to which undergraduate education on mental
health promotion and prevention is available within the health disciplines
at the university and college levels, as well as related education
and social work programs
• v. the extent to which there are interdisciplinary opportunities
for joint education (undergraduate, graduate and continuing education).
C. RESEARCH
Mental health research commands less than 5% of Canadian health
research dollars, yet mental illnesses directly affect 20% of Canadians.
There is a lack of co-ordination among research funding bodies,
and no organized mental illness and mental health research agenda
in Canada. Few private research institutions or community organizations/foundations
fund mental illness and mental health research, and universities
tend to favour placing their fundraising dollars into physical health
and illness research. As other research sectors also argue, Canada
must do much more to foster the interest and careers of its young
researchers and the research community in general in Canada. This
is especially needed in the mental illness and mental health research
fields, where support remains fragmented and woefully inadequate.
We must set higher targets for research funding and in this area,
so that it reflects the burden of mental illness and the contributions
to population health that improved knowledge and practices in mental
health promotion can offer.
Goal C1:
Establish and support a national research agenda.
Options for Action
• Under the Canadian Institutes of Health Research (CIHR)
create a Canadian Institute of Mental Illness and Mental Health
Research (CIMIMHR) to ensure the co-ordinated development and appropriate
funding for mental illness and mental health research.
• Create a set of priorities and research questions for mental
illness and mental health on an annual basis. Proactively encourage
researchers and funders to address the annual research questions.
• Monitor funding levels for mental illness and mental health
research in Canada on an annual basis.
• Foster collaborative networks of research across sectors.
Goal C2:
Establish and implement a public education and awareness strategy
to support comprehensive and sufficient research funding and value
research.
Options for Action
• Facilitate the establishment of communication strategies
that include a national research newsletter discussing all aspects
of national research.
• Facilitate the development and the dissemination of an Annual
Research Report Card.
Goal C3:
Strengthen the voluntary fundraising sector so that it demonstrates
a unified commitment and enhanced support for mental illness/health
research.
Options for Action
• Create an umbrella of research foundations to address mental
illness and mental health research fundraising in a co-ordinated
manner.
• Work with existing fundraising foundations and university
institutes to establish annual fund-raising campaigns with specified
funding goals to support mental illness and mental health research.
Goal C4:
Increase the cadre of new mental illness and mental health researchers.
Options for Action
• Identify, strengthen and support research-training programs
through scientist support programs, fellowships, and postgraduate
and graduate support programs.
• Nurture community researchers and promote the creation of
annual community research awards in mental illness and mental health.
Goal C5:
Create a more supportive environment for Canadian researchers in
mental illness and mental health research.
Options for Action
• Establish an annual scientific symposium showcasing research
in mental illness/health.
• Advocate for national and provincial funders to allocate
a fair share of their money to mental illness and mental health
research.
• Encourage universities to allocate more dollars toward mental
illness and mental health research.
• Foster collaborative partnerships and networks across research
sites and sectors.
Goal C6:
Ensure that mental illness and mental health research informs policy
development in all areas of health.
Options for Action
• Ensure mental illness and mental health researchers identify
the policy implications of their research findings as a condition
of funding.
• Facilitate the dissemination of research findings in the
mental illness and mental health area to policy makers.
Goal C7:
Increase the involvement of consumers, other stakeholders and their
organizations and the voluntary sector in the development, implementation
and dissemination of the knowledge acquired through enhanced mental
illness and mental health research.
Options for Action
• Establish and support a national consumer/family members
participatory research strategy focusing on non-medical/clinical
methods to assist recovery and maintain well-being.
D. NATIONAL DATA/INFORMATION
SYSTEM
Canada currently lacks a national information base to enable us
to accurately identify both the incidence and prevalence of mental
illness, to measure the mental health status of Canadians and to
assist in the evaluation of our mental health/illness policies,
programs and services. We need to collect and assemble data (surveillance
system) that protects individuals’ confidentiality, as well
as develop a system for ongoing accountability (report card). The
information collected nationally would be used to help Canada monitor
and report periodically (e.g. annually), how well we are meeting
the needs of persons with mental illnesses and in promoting the
mental health of Canadians. This reporting process in turn would
inform policy and program choices nationally, provincially, regionally
and locally. It would also ensure the information that is collected
is broadly disseminated and accessible to anyone who needs or desires
it.
Goal D1:
Create a national public health surveillance and reporting program
in collaboration with other stakeholders, including the Laboratory
Centre for Disease Control (LCDC).
Options for Action
• Develop benchmarks or standards for the collection of mental
illness and mental health data that include privacy provisions.
• Develop a framework for data collection and reporting on
mental illness and mental health in Canada.
• Improve the co-ordination of information collection across
provinces and across regions in Canada.
• Support and collaborate with a national public education
and awareness program to provide regular ‘snapshots’
of the state of mental health and mental illness policies, programs
and outcomes for Canadians.
IV. Conclusion
The important role of self-help groups in contributing both to the
healing and restorative processes, as well as to the positive mental
health of people during times of crisis and in enhancing coping
with chronic illness, is only now being recognized and acknowledged
as having real value. Voluntary organizations focusing on mental
illness and mental health issues, whether regrouping consumers,
families, front line providers, community agencies or professionals,
have a wealth of knowledge to be tapped.
Civil Society is commonly defined as the social sphere outside of
government and the private sector that is composed of groups or
associations of people that have been formed to further the interests
of their members. For NGOs (non-governmental organizations), “Building
civil society involves citizens working in partnership with government
and business at all levels of society.’ Many NGOs act as “bridge
builders”, as facilitators and as catalysts for change to
advance the interests of ‘marginalized’ groups. They
engage people on issues that are important to them, commit to action,
generate new ideas and solutions to issues of common concern and
build public support for collective decisions and action. (Burbidge,
1997; Canadian Council for International Cooperation, 1996).
CAMIMH is an example of five NGOs, reflecting a range of perspectives
and roles in mental illness care and mental health promotion, that
have joined together to advance the interests of Canadians with
a mental illness, their families and caregivers and to advocate
for the principle that all Canadians are entitled to good mental
health. Today in Canada many individuals with mental illnesses are
living lives of desperation, fear and pain. We know that Canadians
would care if they were aware of the critical nature of the situation.
Our governments are aware of the issues, but have not placed a high
priority on mental illness and mental health.
Just as broad-based strategies by government and stakeholders have
been able to counter the initial response of fear and stigma to
HIV/AIDS, we are looking for a similar collaborative process facilitated
by government. We know what needs to be done and we know how to
do it! What we need now is the political will and support to make
it happen.
This framework paper
is our beginning to foster a national consensus building process.
We need your feedback on our work. We need your best thinking. Please
help and share your views on our CALL FOR ACTION. We invite your
input! We ask for your support!
Please send your comments
to CAMIMH by:
E-mail: camimh@cpa-apc.org
Fax: 613 234 9857
Mail: 441 MacLaren Street, Suite 260, Ottawa, Ontario, K2P 2H3
Website: http://www.cpa-apc.org
GLOSSARY OF SOME KEY TERMS
Mood Disorder - disturbance in mood as predominant feature (major
depressive, dysthymic, other depressive, bipolar I, bipolar II,
other bipolar, mood disorder due to medical condition, mood not
otherwise specified). (DSM IV, American Psychiatric Press)
Consumer - “ A person who has experienced significant mental
health problems and has used the resources of the mental health
system.” (Canadian Mental Health Association, National Consumer
Advisory Council, 1991) - “... an individual who has, or has
had at some point in his/her life, a personal mental health problem
and had occasion to use formal or informal mental health services.”
(Mental Health Consumer Advocacy Network Nova Scotia and the Self-Help
Connection, 1992).
Determinants of Health - include the following: income and social
status, social support networks, education, employment and working
conditions, physical environment, biologic and genetic endowment,
personal health practices and coping skills, healthy child development
and health services. (Health Canada, 1994).
Individual Empowerment - “refers to an individual’s
ability to make decisions and have control over his or her personal
life” (Israel et al., 1994).
Incidence - is the number of new cases of a particular illness or
disease within a given population.
Integration - is the linking of services offered by two or more
organizations or agencies. This may involve the offering of joint
or combined services. (The Report of the Working Group on Mental
Health, NS, 1992).
Mental Health - “By definition, mental health refers to a
state of psychological well-being and integration.” (The Report
of the Working group on Mental Health, NS, 1992).
Mental health problem - “... is a disruption in the interactions
between the individual, the group and the environment. Such a disruption
may result from factors within the individual, including physical
and mental illness, or inadequate coping skills. It may also spring
from external causes, such as the existence of harsh environmental
conditions, unjust social structures, or tensions within the family
or community.” (Health and Welfare Canada, 1988).
Mental health promotion - “... is the process of enhancing
the capacity of individuals and communities to take control over
their lives and improve their mental health.” (University
of Toronto, Centre for Health Promotion, 1997). “Mental health
promotion is oriented towards building strengths, resources, knowledge
and assets for positive health, with the people concerned controlling
issues and processes. It focuses on the enhancement of well-being,
rather than on illness.” (Joubert, N., Taylor, L. & Williams,
I., 1996).
Mental illness or mental disorder - “... may be defined as
a recognized, medically diagnosable illness that results in the
significant impairment of an individual’s cognitive, affective
or relational abilities. Mental disorders result from biological,
developmental and/or psychosocial factors, and can - in principle,
at least, be managed using approaches comparable to those applied
to physical disease (that is, prevention, diagnosis, treatment and
rehabilitation).” (Health and Welfare Canada, 1988).
Prevalence - is the total number of cases of a particular illness
or disease within a given population.
Prevention in the Mental Illness Field - “... seeks to eliminate
those factors that cause or contribute to the incidence of mental
illness.” (Willinsky & Pape, 1997).
Public Policy - is the broad framework of ideas and values within
which decisions are taken and action or inaction is pursued by groups,
agencies and governments in relation to some issue or problem.
Resilience - “... is the ability to bounce back from life’s
difficulties.” (Willinsky & Pape, 1997).
Schizophrenia - is a biological brain disease that affects thinking,
perception, mood and behaviour. Its exact cause is unknown, but
overwhelming scientific evidence points to faulty brain chemistry
or structural abnormalities in the brain.
Self-help - “…Self-help is one way to deal with the
problems that everyone faces from time to time in their lives. Talking
our problems over with other people who have lived through similar
ones can provide support and help us cope with today’s difficulties.
Self-help is really mutual aid. When we give of ourselves, we not
only help someone else, we help ourselves as well.” (Self-Help
Connection “How to” Manual, Halifax, 1990). “Self-help
or mutual aid is a process wherein people who share common experiences,
situations or problems can offer each other a unique perspective
that is not available from those who have not shared these experiences.”
(International Network for Mutual Help Centres).
Stigma - is defined as a ‘mark of shame or discredit.’
People with mental health problems are often stigmatized due to
lack of knowledge, misinformation and fear. Negative stereotypes
and discrimination towards people who experience mental health problems
continue to exert an unfortunate influence on us all. (Canadian
Mental Health Association, Nova Scotia Division, 1993).
Public Health Surveillance - “ is the on-going, systematic
collection, analysis and interpretation of health data in the process
of describing and monitoring a health event closely integrated with
timely dissemination of information to those who need to know. This
information is used for planning, implementing and evaluating public
health interventions and programs. Surveillance data are used to
determine the need for public health action and to assess the effectiveness
of programs.” (Centres for Disease Control and Prevention,
Guidelines for Evaluating Surveillance Systems)
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APPENDIX A
A Consensus Among Non-Governmental Stakeholders on Underlying Values
and Vision.... A New Basis For Mental Illness and Mental Health
Reform
A new voice has emerged in Canada - a unified consumer, family,
community and professional national voice that came together through
CAMIMH (the Canadian Alliance on Mental Illness and Mental Health)
out of a common desire to get mental illness and mental health on
the national health and social policy agendas.
CAMIMH’s MISSION
To facilitate and promote the establishment and implementation of
a ‘Canadian action plan on mental illness and for mental health’
that reflects a shared national vision for meeting the needs of
persons with mental illnesses and enhancing the potential for the
positive mental health of Canadians.
Core Values
1. We believe in a Canada free of the stigma associated with mental
illness.
2. We believe in people’s capacity to help themselves and
each other.
3. We believe in preserving confidentiality and in informed consent
(for treatment purposes).
4. We believe in promoting optimal mental health for all Canadians.
5. We believe that the knowledge base ABOUT mental illness and mental
health must reflect a variety of perspectives (e.g., different disciplines,
consumers and families).
6. We believe that mental health and illness programs and services
should be based on effective (best) practices.
7. We believe in the meaningful participation of people with mental
illness, together with their families and with professionals, at
all levels of mental health planning, policy development and service
delivery.
8. We believe that all Canadians with mental illnesses have an equal
right to access and continuity of quality health care, social supports**
and the elements of citizenship. ***
9. We believe mental health and mental illness are the responsibility
of every level of government.
10. We believe in a publicly funded and equitable health care system
serving all Canadians including those with a mental illness, their
families and caregivers.
11.We value the diversity of cultures in Canadian society and believe
that our mental health and illness programs and policies need to
reflect this richness, as well as the uniqueness of each individual.
12. We believe in the importance and availability of a wide range
of resource options (e.g., self-help groups, families, hospitals
and community clinics) for the promotion of mental health and for
the prevention, treatment and rehabilitation of persons with mental
illnesses.
** Social Supports are family, friends and self-help groups.
*** Elements of citizenship include work, housing, education and
income.
DESIRED FUTURE
We can look forward to a Canadian Society where:
• Canada is “stigma free” with regard to mentall
illness
• Canadians with mental illness are no longer left to roam
the streets
• People with mental illness are no longer languishing in
jails
• People feel free to speak about their mental illness and
no longer face discrimination
• People with mental illness are valued and treated with dignity
• Research has made great strides in preventing, treating
and curing mental illness
• Canadians with a mental illness are allowed to be valued
contributors to our society
• All people with a mental illness who need assessment, treatment,
rehabilitation and support receive these services
• The impact of mental illness and mental health on the quality
of life is finally understood and accepted
• We understand and value our mental health as much as our
physical health
OUR VISION
By 2005, we see
• A Canada-wide policy framework for mental health reform
in place at all levels of government.
• Canada-wide objectives and priorities for mental health
promotion and mental illness prevention and care.
• An appropriately funded, integrated, accessible system that
provides the continuum of care (i.e., mental health promotion, mental
illness prevention, treatment, rehabilitation, consumer initiatives,
community care and support) that is supported by research, an information
base, as well as public and professional education.
• A system that focuses on meeting the diverse needs of individuals
and families.
• A system based on meaningful partnerships among consumers,
families, professionals and communities.
• A system accountable to its stakeholders by providing an
annual mental health progress report.
We acknowledge the omission of the perspectives of specific groups,
and especially of aboriginal peoples, in the above vision. As we
do not currently have representatives of these groups as members
of CAMIMH, we require consultation with such groups at a future
phase in our process to ensure their needs and concerns are appropriately
addressed and included.
APPENDIX B
This discussion paper is the first step toward the development of
consensus for a national action plan on mental illness and mental
health. It is a tool to facilitate discussion, stimulate ideas and
build a strong national coalition to promote its implementation
by all levels of government.
The process for coming to a consensus among the representatives
of CAMIMH started with coming to a consensus on core values and
a vision for the future of how Canada will meet the needs of persons
with mental illnesses and promote the positive mental health of
Canadians.
Please engage in discussions around this paper to join CAMIMH’s
consultation process with a broad range of stakeholders to help
expand, strengthen and build on the initial ideas in this paper
and to develop a wide consensus on an action plan for Canada.
QUESTIONS FOR DISCUSSION
Part 1: Values, Vision, Desired Future
1. Which of CAMIMH’s values do you most strongly support and
why?
2. Which values do you least support and why?
3. What changes (if
any) would you suggest so that these better reflect your own values
or those of your organization/group?
4. Are there any elements of this desired future to which you are
less committed than others? If so, which ones are you the least
committed to and which are you the most committed to/attached to?
5. Are there any other elements that you would like to see added
to the desired future? If so, what are they?
6. Do you believe this vision is achievable? ? Yes ? No
If yes, why? If not, why?
7. Does the vision capture the most important changes to the system
you/your organization would like to see to further mental health
and illness in Canada?
Yes ? No ? If yes, why? If no, why?
8. Is there anything you would change about this vision?
Yes ? No ? If yes, why? If no, why?
9. What changes would you suggest to make this vision more relevant
to you and/or your organization/group (e.g, what would you add,
remove or modify)?
Part II: Framework for Action
10. Of the four Areas for Action suggested for the Framework for
Action above, the one that is most relevant to my organization’s
or community’s priorities is:
11. Do you think the four areas capture the most critical areas
for action that can be taken at a national level?
Yes ? No ? If not, what other areas would you like to see included?
12. Are there goals you would like to add to any of the four areas?
If so please specify.
Public Education and Awareness:
Policy Framework:
Research:
National Information-Data System:
13. Are there any goals you would like to see removed in any of
the action areas, and if so which ones and why?
Public Education and Awareness:
Policy Framework:
Research
National Information-Data System:
14. Are there options for action you would like to add to any of
the goals, and if so please specify?
Public Education and Awareness:
Policy Framework:
Research:
National Information-Data System:
15. Are there any other gaps or concerns you or your organization
has regarding the suggestions in any the above Areas for Action?
If so, please outline which ones and your suggestions for change.
16. I/we would offer the following suggestions to improve the Framework
for Action:
17. Do you have suggestions with regard to getting a meaningful
national mental illness and mental health action plan adopted in
Canada? What are the barriers and how do you think these can best
be overcome?
Hold a workshop or take some time out of your group's regular agenda
to discuss the paper. Report on the results using this questionnaire
as a guide. Feel free to provide general comments as well.
Please return your comments to CAMIMH by:
E-mail: camimh@cpa-apc.org
Fax: 613-234-9857
Mail: 441 MacLaren Street, Suite 260, Ottawa, Ontario, K2P 2H3
Web site: http://www.cpa-apc.org/public/camimh.asp
OTHER CAMIMH DOCUMENTS AVAILABLE UNDER SEPARATE COVER
A: Working Model for a Canadian Institute on Mental Illness and
Mental Health Research
B: Development of a Canadian Mental Illness and Mental Health Surveillance
System: A Discussion Paper
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